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 Bill Text - SB-1047 Neurodegenerative disease registry program.

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 |Add To My Favorites |Track Bill | Version: 05/14/26 - Amended Senate
 04/06/26 - Amended Senate
 02/12/26 - Introduced

 SB-1047 Neurodegenerative disease registry program.(2025-2026)

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 Date Published: 05/15/2026 10:42 AM

SB1047:v97#DOCUMENTBill Start

 Amended
 IN 
 Senate
 May 14, 2026

 Amended
 IN 
 Senate
 April 06, 2026

 CALIFORNIA LEGISLATURE—
 2025–2026 REGULAR SESSION

 Senate Bill

No. 1047

Introduced by Senators Niello and Allen
(Coauthor: Senator Ochoa Bogh)(Coauthors: Senators Alvarado-Gil, Ochoa Bogh, Seyarto, and Valladares)
(Coauthor: Assembly Member Irwin)(Coauthors: Assembly Members Irwin and Tangipa)

February 12, 2026

 An act to amend Sections 103871 and 103871.2 of the Health and Safety Code, relating to public health.

LEGISLATIVE COUNSEL'S DIGEST

SB 1047, as amended, Niello.
 Neurodegenerative disease registry program.

Existing law, until January 1, 2028, and to the extent funds are made available for these purposes, requires the State Department of Public Health to establish a system for the collection of information determining the incidence and prevalence of neurodegenerative diseases, including, but not limited to, amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. Existing law requires a hospital, facility, physician and surgeon, or other health care provider diagnosing or providing treatment to a patient for a neurodegenerative disease to report each case of a neurodegenerative disease to the department, as prescribed. Existing law requires the department to designate the specified neurodegenerative diseases required to be reported in the state or any part of the state. Existing law specifies that for this purpose, “neurodegenerative disease” may include, but need not be
 limited to, Alzheimer’s disease, multiple sclerosis, and Huntington’s disease.

This bill would require the department to establish a system for the collection of information determining the incidence and prevalence of frontotemporal degeneration (FTD). This bill would specify that “neurodegenerative disease” may also include other dementias. The bill would extend the requirements of these provisions until January 1, 2032.

Digest Key

 Vote:
 MAJORITY 
 Appropriation:
 NO 
 Fiscal Committee:
 YES 
 Local Program:
 NO 

Bill Text

The people of the State of California do enact as follows:

SECTION 1.

 Section 103871 of the Health and Safety Code is amended to read:

103871.

 (a) The department shall collect data on the incidence of neurodegenerative disease in California.

(b) The department shall establish a system for the collection of information determining the incidence and prevalence of neurodegenerative diseases, including, but not limited to, amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, and frontotemporal degeneration (FTD). The department shall designate the specified neurodegenerative diseases as a disease required to be reported in the state or any part of the state. All cases of neurodegenerative disease diagnosed or treated in California shall be reported to the department.

(c) The department shall provide notification of the mandatory reporting of neurodegenerative disease on its internet website and shall also provide that information to associations representing physicians and hospitals and directly to the Medical Board of California at least 90 days prior to requiring information be reported.

(d) A hospital, facility, physician and surgeon, or other health care provider diagnosing or providing treatment for a patient with a neurodegenerative disease shall report each case of a neurodegenerative disease to the department in a format prescribed by the department.

(e) If the hospital or other facility fails to report in a format prescribed by the department, the department’s authorized representative may access the information from
 the hospital or the facility and report it in the appropriate format. In these cases, the hospital or other facility shall reimburse the department or the authorized representative for its costs to access and report the information.

(f) A physician and surgeon, hospital, outpatient clinic, and any other facility, individual, or agency providing diagnostic or treatment services to a patient with a neurodegenerative disease shall grant to the department or the authorized