New York K 517: Honoring Lilia Perez of RGNY upon the occasion of her designation as recipient of the Decanter World Wine Award

Bill Text

Bill Search and Legislative Information | New York State Assembly 

• 

• 

• 

• 

• 

• 

• 

• 

 Skip to main content 

 New York State Assembly

 Speaker Carl E. Heastie

 --> 
 --> 

 --> 

• 
 Assembly Members 

• 
 Legislative Info 

• 
 Public Hearings 

• 
 Speaker's Press 

• 
 Assembly Reports 

• 
 Committees & More 

• Bill Search Home
• Laws
• Legislative Calendar
• Public Hearing Schedule
• Assembly Calendars
• Assembly Committee Agenda 

 Javascript must be enabled to properly view this page. 

 - This bill is not active in this session.

 Bill No.: 

• Summary 
• Actions 
• Committee&nbspVotes 
• Floor&nbspVotes 
• Memo 
• Text 
• LFIN 
• Chamber&nbspVideo/Transcript 
K00517 Summary:

BILL NOK00517 

&nbsp

SAME ASNo Same As

&nbsp

SPONSORDurso

&nbsp

COSPNSR

&nbsp

MLTSPNSRButtenschon

&nbsp

&nbsp

Go to top K00517 Actions:

BILL NOK00517 

&nbsp

05/14/2025referred to calendar

05/15/2025adopted

Go to topK00517 Committee&nbspVotes:

Go to topK00517 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topK00517 Text:

Assembly Resolution No. 517

BY: M. of A. Durso

 MEMORIALIZING Governor Kathy Hochul to proclaim
 May 2025, as Amyotrophic Lateral Sclerosis Awareness
 Month in the State of New York

 WHEREAS, It is the custom of this Legislative Body to help increase
awareness of serious health conditions that affect the lives of citizens
of New York State; and

 WHEREAS, Attendant to such concern, and in full accord with its
long-standing traditions, this Legislative Body hereby memorializes
Governor Kathy Hochul to proclaim May 2025, as Amyotrophic Lateral
Sclerosis (ALS) Awareness Month in the State of New York, in conjunction
with the observance of the 28th Anniversary of ALS Ride for Life; and

 WHEREAS, Amyotrophic lateral sclerosis (ALS), sometimes called Lou
Gehrig's disease, is a progressive disease that attacks the nerve cells
that control voluntary movement; and

 WHEREAS, In ALS, both the upper motor neurons and the lower motor
neurons degenerate or die, ceasing to send messages to muscles; unable
to function, the muscles gradually weaken, waste away, and twitch;
ultimately, the ability of the brain to start and control voluntary
movement is lost; and

 WHEREAS, Once ALS starts, it almost always progresses, eventually
taking away the ability to walk, dress, write, speak, swallow and
breathe, and shortening the life span; and

 WHEREAS, ALS is 100% fatal and has few treatments to improve the
quality of life; and

 WHEREAS, There are two different types of ALS, sporadic and
familial; sporadic, which is the most common form of the disease in the
United States, encompasses 90 percent of all cases; it may affect
anyone, anywhere; familial ALS (FALS) accounts for 10 percent of all
cases in the United States and means the disease is inherited; and

 WHEREAS, Most people live about three to five years after they
experience their first signs of disease, with one in 10 people surviving
at least 10 years; the variable rate of disease progression makes
prognosis difficult to predict and therapies challenging to develop; and

 WHEREAS, Every 90 minutes, someone is diagnosed with ALS; people who
develop ALS are generally between the ages of 40 and 70, with the
majority after age 60, although it can occur at a younger age; and

 WHEREAS, Approximately 5,000 people in the United States are
diagnosed with ALS each year; the incidence of ALS is two per 100,000
people; and

 WHEREAS, Furthermore, it is estimated that more than 30,000
Americans may be living with ALS at any given time; and

 WHEREAS, Most surveys find that ALS is more common in men than
women, though that gap may be closing; in addition, military veterans
are approximately twice as likely to develop ALS; and

 WHEREAS, ALS occurs throughout the world with no obvious racial,
ethnic or socioeconomic boundaries; and

 WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month increases the
public's awareness of ALS patients' circumstances and acknowledges the
terrible impact this disease has not only on patients but on their
families as well; and

 WHEREAS, The ALS Ride for Life was founded in 1997 by Christopher
Pendergast (PALS) who defied the odds, living with ALS for 28 years; and

 WHEREAS, Prior to his death in October of 2020, Christopher
Pendergast served as the President and driving force of this vital
organization where he led a small but mighty staff and many volunteers;
since its inception, the ALS Ride for Life has provided funding to many
leading research facilities across the country including, Stony Brook
University, Johns Hopkins, and Columbia Presbyterian; and

 WHEREAS, Christopher Pendergast's legacy will long endure the
passage of time as we celebrate the 27th Anniversary of the ALS Ride for
Life which benefits countless initiatives in the fight to save lives
from this devastating disease; and

 WHEREAS, It is imperative that there be greater awareness of this
serious