Illinois HR 619: SPINAL ATROPHY AWARENESS MONTH

Bill Text

• 

 Illinois General Assembly - Full Text of HR0619 

• 

• 

• 

• 

• 

• 

• 

• 

• 

• 

• 

• 

 Select Language

 × 

 The Illinois General Assembly offers the Google Translate™ service for visitor convenience. In no way should it be considered accurate as to the translation of any content herein.

 Visitors of the Illinois General Assembly website are encouraged to use other translation services available on the internet.

 The English language version is always the official and authoritative version of this website.

 NOTE: To return to the original English language version, select the "Show Original" button on the Google Translate™ menu bar at the top of the window.

 Choose Language 

 English 

 Afrikaans 

 Albanian 

 Arabic 

 Armenian 

 Azerbaijani 

 Basque 

 Bengali 

 Bosnian 

 Catalan 

 Croatian 

 Czech 

 Danish 

 Dutch 

 Esperanto 

 Estonian 

 Filipino 

 Finnish 

 French 

 Galician 

 Georgian 

 German 

 Greek 

 Gujarati 

 Haitian Creole 

 Hausa 

 Hawaiian 

 Hebrew 

 Hindi 

 Hungarian 

 Icelandic 

 Indonesian 

 Interlingua 

 Interlingue 

 Inuktitut 

 Irish 

 Italian 

 Japanese 

 Javanese 

 Kannada 

 Khmer 

 Korean 

 Latin 

 Latvian 

 Lithuanian 

 Luxembourgish 

 Macedonian 

 Malagasy 

 Malayalam 

 Maltese 

 Maori 

 Marathi 

 Myanmar 

 Nepali 

 Norwegian 

 Odia 

 Pashto 

 Punjabi 

 Romanian 

 Russian 

 Samoan 

 Sango 

 Sanskrit 

 Sardinian 

 Sindhi 

 Sinhala 

 Slovak 

 Slovenian 

 Somali 

 Southern Sotho 

 Spanish 

 Sundanese 

 Swahili 

 Swedish 

 Tamil 

 Telugu 

 Thai 

 Tigrinya 

 Tonga 

 Turkish 

 Ukrainian 

 Urdu 

 Vietnamese 

 Welsh 

 Xhosa 

 Yiddish 

 Yoruba 

 Zulu 

 Powered by Translate 

 Close 

 Illinois General Assembly

 Top Navigation Bar

 Translate 

 Learn 

 Select General Assembly 

 Search the 104th General Assembly 

 Enter search terms for legislation, members, committees, or schedules. 

 ILGA.GOV 

• 

• 

 LEGISLATION & LAWS 

• Bills & Resolutions 

• Public Acts 

• Illinois Compiled Statutes 

• Illinois Constitution 

• Search Legislation 

• Glossary 

• Guide 

• 

 Reports & Inquiry 

• Legislative Reports 

• Special Reports 

• FTP Site 

• Legislator Lookup 

• Capitol Complex Phone Numbers 

• 

 Rules & Regulations 

• Illinois Register 

• Administrative Rules 

• 

 Senate 

• 
 Members 

• Schedules 

• Committees 

• 

 Request for Remote Testimony 

• Journals 

• Transcripts 

• Rules 

• Audio/Video 

• FOIA Information 

• Senate Employment Opportunities 

• Media Guidelines 

• 

 House 

• 
 Members 

• Schedules 

• Committees 

• 

 Submit testimony for House Committees 

• Journals 

• Transcripts 

• Rules 

• Audio/Video 

• FOIA Information 

• House Employment Opportunities 

• Log In 

 Mobile Top Bar

 Search the 104th General Assembly 

 Enter keywords to search the Illinois General Assembly website. 

 Full Text of HR0619

• Home 

• Legislation 

• Full Text 

 HR0619 - 104th General Assembly 

• 
 Bill Status 

• 
 Full Text 

• 
 Votes 

• 
 Witness Slips 

 Select Menu 

 Bill Status 
 Full Text 
 Votes 
 Witness Slips 
 Printer Friendly Version 

 Introduced 

 Printer Friendly Version 

 Introduced 

 Open PDF 

HR0619LRB104 17794 MST 31226 r

1HOUSE RESOLUTION

2 WHEREAS, The members of Illinois House of Representatives 

3wish to raise awareness surrounding the rare disease of spinal 

4muscular atrophy; and

5 WHEREAS, Spinal muscular atrophy is a degenerative, 

6genetic neurological condition that affects and prevents 

7motor-control neurons from sending signals from the central 

8nervous system to the body's muscles, causing the loss of 

9muscle control and ultimately muscle wasting; and

10 WHEREAS, Spinal muscular atrophy is a rare genetic 

11neuromuscular disease; and

12 WHEREAS, In the United States, an estimated one in 11,000 

13babies are born with spinal muscular atrophy; and

14 WHEREAS, There are four types of spinal muscular atrophy, 

15the most severe of which may require a ventilator and feeding 

16tubes; and

17 WHEREAS, Spinal muscular atrophy affects everyone 

18differently, and symptoms can vary greatly according to the 

19age of onset and the severity of the disease; and

HR0619- 2 -LRB104 17794 MST 31226 r

1 WHEREAS, Those who suffer from spinal muscular atrophy 

2have normally developed brains and are bright, sensitive, and 

3full of life despite their diagnosis; and

4 WHEREAS, Unlike many other rare neuromuscular diseases, 

5there is a clear understanding of the specific genetic cause 

6of spinal muscular atrophy; and

7 WHEREAS, Ongoing research offers the promise that a cure 

8for spinal muscular atrophy may one day be found; and

9 WHEREAS, Increased awareness of spinal muscular atrophy 

10will lead to increased knowledge and support for both disease 

11research and the families affected by the disease; therefore, 

12be it

13 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 

14HUNDRED F