New York J 986: Memorializing Governor Kathy Hochul to proclaim May 2025, as Cystic Fibrosis Awareness Month in the State of New York

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J00986 Summary:

BILL NOJ00986 

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SAME ASNo Same As

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SPONSORFAHY

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COSPNSRADDABBO, ASHBY, BAILEY, BASKIN, BORRELLO, BRISPORT, BROUK, BYNOE, CANZONERI-FITZPATRICK, CHAN,
 CLEARE, COMRIE, COONEY, FERNANDEZ, GALLIVAN, GIANARIS, GONZALEZ, GOUNARDES, GRIFFO, HARCKHAM,
 HELMING, HINCHEY, HOYLMAN-SIGAL, JACKSON, KAVANAGH, KRUEGER, LANZA, LIU, MARTINEZ, MARTINS,
 MATTERA, MAY, MAYER, MURRAY, MYRIE, OBERACKER, O'MARA, ORTT, PALUMBO, PARKER, PERSAUD, RAMOS,
 RHOADS, RIVERA, ROLISON, RYAN C, RYAN S, SALAZAR, SANDERS, SCARCELLA-SPANTON, SEPULVEDA, SERRANO,
 SKOUFIS, STAVISKY, STEC, STEWART-COUSINS, TEDISCO, WALCZYK, WEBB, WEBER, WEIK

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MLTSPNSR

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Go to top J00986 Actions:

BILL NOJ00986 

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05/12/2025REFERRED TO FINANCE

05/20/2025REPORTED TO CALENDAR FOR CONSIDERATION

05/20/2025ADOPTED

Go to topJ00986 Committee&nbspVotes:

Go to topJ00986 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topJ00986 Text:

Senate Resolution No. 986

BY: Senator FAHY

 MEMORIALIZING Governor Kathy Hochul to proclaim
 May 2025, as Cystic Fibrosis Awareness Month in the
 State of New York

 WHEREAS, It is the custom of this Legislative Body to recognize
official months that are set aside to increase awareness of serious
illnesses that affect the lives of citizens of New York State; and

 WHEREAS, Attendant to such concern, and in full accord with its
long-standing traditions, this Legislative Body is justly proud to
memorialize Governor Kathy Hochul to proclaim May 2025, as Cystic
Fibrosis Awareness Month in the State of New York, in conjunction with
the observance of National Cystic Fibrosis Month; and

 WHEREAS, Cystic fibrosis, commonly referred to as "CF", is a genetic
disease affecting approximately 40,000 children and adults in the United
States and more than 105,000 children and adults worldwide, over 1,600
of whom live in New York; furthermore, approximately 1,000 new cases are
diagnosed each year; and

 WHEREAS, A defective gene causes the body to produce an abnormally
thick, sticky mucus that clogs the lungs, and these secretions produce
life-threatening lung infections and obstruct the pancreas, preventing
digestive enzymes from reaching the intestines to help break down and
absorb food; and

 WHEREAS, More than 10 million Americans are symptomless carriers of
the defective CF gene; and

 WHEREAS, The median predicted age of survival for a person with CF,
born in 2019, is 48.4 years; and

 WHEREAS, With advances in the treatment of CF, the number of adults
with CF has steadily grown, and approximately 900 new cases of CF are
diagnosed each year; and

 WHEREAS, 56% of the CF population is 18 years of age and older, and
people with CF have a variety of symptoms attributed to the more than
2,000 mutations of the CF gene; and

 WHEREAS, Infant blood screening to detect genetic defects is the
most reliable and least costly method to identify persons likely to have
CF; and

 WHEREAS, Early diagnosis of CF permits early treatment and enhances
quality of life and longevity and the treatment of CF depends on the
stage of the disease and the organs involved; and

 WHEREAS, Clearing mucus from the lungs is an important part of the
daily CF treatment regimen, and other types of treatments include
inhaled antibiotics and pancreatic enzymes, among others; and

 WHEREAS, There are 21 world-class treatment centers in New York
which specialize in the diagnosis of CF and the care of persons with CF;
and

 WHEREAS, A critical component of treating patients with CF includes
access to innovative treatments, which can play a crucial role in the
lives of patients with CF; and

 WHEREAS, It is imperative that there be greater public awareness of
this serious disease, and more must be done to increase activity at the
local, State and national levels; now, therefore, be it

 RESOLVED, That this Legislative Body pause in its deliberations to
memorialize Governor Kathy Hochul to proclaim May 2025, as Cystic
Fibrosis Awareness Month in the State of New York; and be it further

 RESOLVED, That a copy of this Resolution, suitably engrossed, be
transmitted to The Honorable Kathy Hochul, Governor of the State of New
York.

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