Illinois HR 370: CONGRATS - SUSAN B. FRIEND

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HR0370LRB104 13747 MST 26484 r

1HOUSE RESOLUTION

2 WHEREAS, Williams syndrome is a complex genetic disorder 

3that occurs in approximately one out of every 10,000 births 

4and is a commonly known genetic cause of pulmonary stenosis; 

5and

6 WHEREAS, Williams syndrome affects males and females with 

7equal frequency and affects all races and ethnicities; and

8 WHEREAS, Williams syndrome can cause improper 

9cardiovascular development, often resulting in cardiac 

10defects, which are the major cause of death for individuals 

11with the syndrome; and

12 WHEREAS, Williams syndrome also causes cognitive and 

13learning disabilities as well as behavioral difficulties, such 

14as attention-deficit/hyperactivity disorder and struggles with 

15controlling mood regulation; and

16 WHEREAS, The developmental, medical, and behavioral 

17characteristics of Williams syndrome cause many affected 

18individuals to require constant and lifelong supervision; and

19 WHEREAS, Studies have shown that there is a high cardiac 

20morbidity rate for individuals with Williams syndrome; and

HR0370- 2 -LRB104 13747 MST 26484 r

1 WHEREAS, There is no known cure for Williams syndrome; and

2 WHEREAS, Early diagnosis of Williams syndrome allows 

3families to access treatment, assistive services, therapies, 

4and support from health professionals, advocacy organizations, 

5and other families who have loved ones with the syndrome; and

6 WHEREAS, While beneficial programs, such as therapies and 

7social training, are improving the quality of life for 

8individuals with the syndrome and offer new hope to families, 

9many difficult symptoms associated with Williams syndrome 

10remain untreated; and

11 WHEREAS, Increased research into Will