Florida SB 1686: Public Records/Parkinson’s Disease Registry

Bill Text

1686 
Public Records/Parkinson’s Disease Registry 
2026-02-12T06:19:26Z 
Providing an exemption from public records requirements for certain records and personal identifying information submitted to the Parkinson’s Disease Registry; providing for future legislative review and repeal; providing a statement of public necessity, etc. 
Committee Substitute 1 
2026 
S 
GB 
General Bill 
c1 

 Florida Senate - 2026 CS for SB 1686 

 By the Committee on Health Policy; and Senator Calatayud 

 588-02794-26 20261686c1 
 1 A bill to be entitled 
 2 An act relating to public records; amending s. 
 3 1004.4352, F.S.; providing an exemption from public 
 4 records requirements for certain records and personal 
 5 identifying information submitted to the Parkinson’s 
 6 Disease Registry; providing for future legislative 
 7 review and repeal; providing a statement of public 
 8 necessity; providing a contingent effective date. 
 9 
 10 Be It Enacted by the Legislature of the State of Florida: 
 11 
 12 Section 1. Paragraph (f) is added to subsection (5) of 
 13 section 1004.4352, Florida Statutes, as created by SB 1684, 2026 
 14 Regular Session, to read: 
 15 1004.4352 Parkinson’s disease research.— 
 16 (5) PARKINSON’S DISEASE REGISTRY.—Subject to a specific 
 17 appropriation, the department shall contract with the consortium 
 18 to establish and maintain a Parkinson’s Disease Registry to 
 19 ensure that the Parkinson’s disease data required to be 
 20 submitted under paragraph (a) is maintained and available for 
 21 use for research to advance therapies, improve patient outcomes, 
 22 and find potential cures for the disease. The department 
 23 contract must require the consortium to use a nationally 
 24 recognized platform to collect data from physicians as required 
 25 in paragraph (a). 
 26 (f) All records and personal identifying information 
 27 relating to persons diagnosed with or treated for Parkinson’s 
 28 disease which is submitted to the registry under this subsection 
 29 are confidential and exempt from s. 119.07(1) and s. 24(a), Art. 
 30 I of the State Constitution, except that: 
 31 1. Release may be made with the written consent of persons 
 32 to whom the information applies. 
 33 2. The department or the consortium may contact individuals 
 34 for the purpose of epidemiological investigation and monitoring, 
 35 provided information that is confidential under this subsection 
 36 is not further disclosed. 
 37 3. The department may enter into a data-sharing agreement 
 38 with any other governmental agency or entity for the purpose of 
 39 medical or scientific research, provided such governmental 
 40 agency or entity does not further disclose information that is 
 41 confidential under this subsection. 
 42 
 43 This paragraph is subject to the Open Government Sunset Review 
 44 Act in accordance with s. 119.15 and shall stand repealed on 
 45 October 2, 2031, unless reviewed and saved from repeal through 
 46 reenactment by the Legislature. 
 47 Section 2. The Legislature finds that it is a public 
 48 necessity that all records and personal identifying information 
 49 relating to persons diagnosed with or treated for Parkinson’s 
 50 disease which is submitted to the Parkinson’s Disease Registry 
 51 pursuant to s. 1004.4352(5), Florida Statutes, be made 
 52 confidential and exempt from s. 119.07(1), Florida Statutes, and 
 53 s. 24(a), Article I of the State Constitution. The Department of 
 54 Health and the University of South Florida’s Consortium for 
 55 Parkinson’s Disease Research are unable to effectively implement 
 56 the legislative purpose of the Parkinson’s Disease Registry, 
 57 created under s. s. 1004.4352(5), Florida Statutes, without 
 58 access to these records and information, which include personal 
 59 medical information, the disclosure of which would violate 
 60 federal patient privacy laws, including the Health Insurance 
 61 Portability and Accountability Act of 1996. Therefore, the 
 62 Legislature finds that it is a public necessity to make such 
 63 records and information held by the department confidential and 
 64 exempt to protect the privacy rights of persons diagnosed with 
 65 and treated for Parkinson’s disease in this state and promote 
 66 the effective administration of the department’s epidemiological 
 67 research and tracking activities. 
 68 Section 3. This act shall take effect on the same date that 
 69 SB 1684 or similar legislation takes effect, if such legislation 
 70 is adopted in the same legislative session or an extension 
 71 thereof and becomes a law.