New York A 2476: Authorizes reimbursement for testing for familial dysautonomia, Canavan's disease and Tay-Sachs

Status: REFERRED TO INSURANCE (as of 2026-01-07)

State: New York · Session: 2025-2026 · Bill: A 2476

Sponsors: Jeffrey Dinowitz, Amy Paulin, Andrew Hevesi, Chris Burdick, Christopher Eachus, David McDonough, Edward Braunstein, Jessica Gonzalez-Rojas, Jo Anne Simon, MaryJane Shimsky, Vivian Cook

Bill Text

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A02476 Summary:

BILL NOA02476 

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SAME ASSAME AS S06466

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SPONSORDinowitz

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COSPNSRPaulin, Burdick, Braunstein, Hevesi, Cook, Simon, McDonough, Gonzalez-Rojas, Shimsky, Eachus

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MLTSPNSR

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Amd §§3216, 3221 & 4303, Ins L

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Provides that every policy which provides coverage for hospital, surgical or medical care or provides reimbursement for laboratory tests or diagnostic X-rays shall provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs; provides that in order to maintain the confidentiality of persons tested, receipt of acknowledgement from the testing facility shall be deemed sufficient evidence of testing.

Go to top A02476 Actions:

BILL NOA02476 

&nbsp

01/17/2025referred to insurance

01/07/2026referred to insurance

Go to topA02476 Committee&nbspVotes:

Go to topA02476 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topA02476 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 2476

 2025-2026 Regular Sessions

 IN ASSEMBLY

 January 17, 2025
 ___________

 Introduced by M. of A. DINOWITZ, PAULIN, BURDICK, BRAUNSTEIN, HEVESI,
 COOK, SIMON, McDONOUGH, GONZALEZ-ROJAS, SHIMSKY, EACHUS -- read once
 and referred to the Committee on Insurance

 AN ACT to amend the insurance law, in relation to reimbursement for
 testing for familial dysautonomia, Canavan's disease and Tay-Sachs

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. Subsection (i) of section 3216 of the insurance law is
 2 amended by adding a new paragraph 40 to read as follows:
 3 (40) (A) Every policy which provides coverage for hospital, surgical
 4 or medical care or provides reimbursement for laboratory tests or
 5 reimbursement for diagnostic X-ray services shall provide coverage for
 6 testing for familial dysautonomia, Canavan's disease and Tay-Sachs.
 7 (B) Such coverage shall be included at the inception of all new poli-
 8 cies and, with respect to all other policies, at any anniversary date of
 9 the policy subject to evidence of insurability.
 10 (C) For purposes of this paragraph, in order to maintain the confiden-
 11 tiality of persons tested, receipt of an acknowledgment from the labora-
 12 tory performing the test for familial dysautonomia, Canavan's disease
 13 and Tay-Sachs shall be deemed sufficient evidence of the performance of
 14 such testing.
 15 (D) Such coverage may be subject to annual deductibles and co-insu-
 16 rance as may be deemed appropriate by the superintendent and as are
 17 consistent with those established for other benefits within a given
 18 policy.
 19 § 2. Subsection (l) of section 3221 of the insurance law is amended by
 20 adding a new paragraph 23 to read as follows:
 21 (23) (A) A group policy which provides coverage for hospital, surgical
 22 or medical care or provides reimbursement for laboratory tests or
 23 reimbursement for diagnostic X-ray services shall provide coverage for
 24 testing for familial dysautonomia, Canavan's disease and Tay-Sachs.

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD04430-01-5

 A. 2476 2

 1 (B) Such coverage shall be included at the inception of all new poli-
 2 cies and, with respect to all other policies, at any anniversary date of
 3 the policy subject to evidence of insurability.
 4 (C) For purposes of this paragraph, in order to maintain the confiden-
 5 tiality of persons tested, receipt of an acknowledgment from the labora-
 6 tory performing the test for familial dysautonomia, Canavan's disease
 7 and Tay-Sachs shall be deemed sufficient evidence of the performance of
 8 such testing.
 9 (D) Such coverage may be subject to annual deductibles and co-insu-
 10 rance as may be deemed appropriate by the superintendent and as are
 11 consistent with those established for other benefits within a given
 12 policy.
 13 § 3. Section 4303 of the insurance law is amended by adding a new
 14 subsection (ww) to read as follows:
 15 (ww) (1) A medical expense indemnity corporation, a hospital service
 16 corporation or a health service corporation which provides coverage for
 17 hospital, surgical or medical care or provides reimbur

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