New York A 2476: Authorizes reimbursement for testing for familial dysautonomia, Canavan's disease and Tay-Sachs
Status: REFERRED TO INSURANCE (as of 2026-01-07)
State: New York · Session: 2025-2026 · Bill: A 2476
Sponsors: Jeffrey Dinowitz, Amy Paulin, Andrew Hevesi, Chris Burdick, Christopher Eachus, David McDonough, Edward Braunstein, Jessica Gonzalez-Rojas, Jo Anne Simon, MaryJane Shimsky, Vivian Cook
Bill Text
Bill Search and Legislative Information | New York State Assembly • • • • • • • • Skip to main content New York State Assembly Speaker Carl E. Heastie --> --> --> • Assembly Members • Legislative Info • Public Hearings • Speaker's Press • Assembly Reports • Committees & More • Bill Search Home • Laws • Legislative Calendar • Public Hearing Schedule • Assembly Calendars • Assembly Committee Agenda Javascript must be enabled to properly view this page. Bill No.: • Summary • Actions • Committee Votes • Floor Votes • Memo • Text • LFIN • Chamber Video/Transcript A02476 Summary: BILL NOA02476   SAME ASSAME AS S06466   SPONSORDinowitz   COSPNSRPaulin, Burdick, Braunstein, Hevesi, Cook, Simon, McDonough, Gonzalez-Rojas, Shimsky, Eachus   MLTSPNSR   Amd §§3216, 3221 & 4303, Ins L   Provides that every policy which provides coverage for hospital, surgical or medical care or provides reimbursement for laboratory tests or diagnostic X-rays shall provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs; provides that in order to maintain the confidentiality of persons tested, receipt of acknowledgement from the testing facility shall be deemed sufficient evidence of testing. Go to top A02476 Actions: BILL NOA02476   01/17/2025referred to insurance 01/07/2026referred to insurance Go to topA02476 Committee Votes: Go to topA02476 Floor Votes: There are no Assembly votes for this bill in this legislative session. Go to topA02476 Text: STATE OF NEW YORK ________________________________________________________________________ 2476 2025-2026 Regular Sessions IN ASSEMBLY January 17, 2025 ___________ Introduced by M. of A. DINOWITZ, PAULIN, BURDICK, BRAUNSTEIN, HEVESI, COOK, SIMON, McDONOUGH, GONZALEZ-ROJAS, SHIMSKY, EACHUS -- read once and referred to the Committee on Insurance AN ACT to amend the insurance law, in relation to reimbursement for testing for familial dysautonomia, Canavan's disease and Tay-Sachs The People of the State of New York, represented in Senate and Assem- bly, do enact as follows: 1 Section 1. Subsection (i) of section 3216 of the insurance law is 2 amended by adding a new paragraph 40 to read as follows: 3 (40) (A) Every policy which provides coverage for hospital, surgical 4 or medical care or provides reimbursement for laboratory tests or 5 reimbursement for diagnostic X-ray services shall provide coverage for 6 testing for familial dysautonomia, Canavan's disease and Tay-Sachs. 7 (B) Such coverage shall be included at the inception of all new poli- 8 cies and, with respect to all other policies, at any anniversary date of 9 the policy subject to evidence of insurability. 10 (C) For purposes of this paragraph, in order to maintain the confiden- 11 tiality of persons tested, receipt of an acknowledgment from the labora- 12 tory performing the test for familial dysautonomia, Canavan's disease 13 and Tay-Sachs shall be deemed sufficient evidence of the performance of 14 such testing. 15 (D) Such coverage may be subject to annual deductibles and co-insu- 16 rance as may be deemed appropriate by the superintendent and as are 17 consistent with those established for other benefits within a given 18 policy. 19 § 2. Subsection (l) of section 3221 of the insurance law is amended by 20 adding a new paragraph 23 to read as follows: 21 (23) (A) A group policy which provides coverage for hospital, surgical 22 or medical care or provides reimbursement for laboratory tests or 23 reimbursement for diagnostic X-ray services shall provide coverage for 24 testing for familial dysautonomia, Canavan's disease and Tay-Sachs. EXPLANATION--Matter in italics (underscored) is new; matter in brackets [ ] is old law to be omitted. LBD04430-01-5 A. 2476 2 1 (B) Such coverage shall be included at the inception of all new poli- 2 cies and, with respect to all other policies, at any anniversary date of 3 the policy subject to evidence of insurability. 4 (C) For purposes of this paragraph, in order to maintain the confiden- 5 tiality of persons tested, receipt of an acknowledgment from the labora- 6 tory performing the test for familial dysautonomia, Canavan's disease 7 and Tay-Sachs shall be deemed sufficient evidence of the performance of 8 such testing. 9 (D) Such coverage may be subject to annual deductibles and co-insu- 10 rance as may be deemed appropriate by the superintendent and as are 11 consistent with those established for other benefits within a given 12 policy. 13 § 3. Section 4303 of the insurance law is amended by adding a new 14 subsection (ww) to read as follows: 15 (ww) (1) A medical expense indemnity corporation, a hospital service 16 corporation or a health service corporation which provides coverage for 17 hospital, surgical or medical care or provides reimbur
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