Illinois SR 757: FSGS AWARENESS DAY

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SR0757LRB104 21607 RMO 37068 r

1SENATE RESOLUTION

2 WHEREAS, Approximately 1 in 7 American adults have chronic 

3kidney disease, and the third leading cause of chronic kidney 

4disease is glomerulonephritis, often caused by rare kidney 

5diseases such as focal segmental glomerulosclerosis (FSGS); 

6and

7 WHEREAS, FSGS is a condition referring to scarring in the 

8kidneys, often leading to a difficult journey that can, in 

9many cases, result in kidney failure, requiring dialysis, 

10transplants, and cycles of remissions and relapse; and

11 WHEREAS, Of patients with FSGS, 50% of them require 

12dialysis or a kidney transplant within 5 to 10 years of 

13diagnosis; and

14 WHEREAS, FSGS is a severe disease because it often 

15progresses rapidly to kidney failure, and even for patients 

16who receive a kidney transplant, it can recur in their 

17transplanted kidney up to 50% of the time; and

18 WHEREAS, While FSGS can be diagnosed at any age, it is most 

19commonly diagnosed in adults rather than in children and most 

20prevalent in adults over 45 years of age; and

SR0757- 2 -LRB104 21607 RMO 37068 r

1 WHEREAS, FSGS is a burden on our healthcare system, with a 

22019 study estimating that the disease costs Medicaid, 

3Medicare, and private health insurance approximately $2 

4billion annually in direct medical costs, not including 

5indirect and quality of life costs; and

6 WHEREAS, According to data from the National Registry of 

7Rare Kidney Diseases (RaDaR), rare kidney diseases such as 

8FSGS comprise only 5% to 10% of chronic kidney disease 

9patients but account for approximately 30% of kidney failure; 

10and

11 WHEREAS, Many patients face delays in being diagnosed with 

12FSGS, due both to the diffi