New York A 1296: Establishes the rare disease advisory council
Status: SUBSTITUTED BY S1287B (as of 2026-03-10)
State: New York · Session: 2025-2026 · Bill: A 1296
Sponsors: Amy Paulin, Albert A. Stirpe, Angelo J. Morinello, Aron Wieder, Brian Manktelow, Daniel Norber, David Weprin, Erik Dilan, George Alvarez, Jeffrey Dinowitz, Joe Angelino, Joe DeStefano, John K. Mikulin, John Lemondes, John T. McDonald III, Joseph Sempolinski, Judy Griffin, Lester Chang, Linda Rosenthal, MaryJane Shimsky, Michael Durso, Michael Novakhov, Nader Sayegh, Nikki Lucas, Rebecca Kassay
Bill Text
Bill Search and Legislative Information | New York State Assembly • • • • • • • • Skip to main content New York State Assembly Speaker Carl E. Heastie --> --> --> • Assembly Members • Legislative Info • Public Hearings • Speaker's Press • Assembly Reports • Committees & More • Bill Search Home • Laws • Legislative Calendar • Public Hearing Schedule • Assembly Calendars • Assembly Committee Agenda Javascript must be enabled to properly view this page. Bill No.: • Summary • Actions • Committee Votes • Floor Votes • Memo • Text • LFIN • Chamber Video/Transcript A01296 Summary: BILL NOA01296B   SAME ASSAME AS S01287-B   SPONSORPaulin   COSPNSRSayegh, Lucas, DeStefano, McDonald, Otis, Weprin, Pirozzolo, Norber, Novakhov, Chang, Alvarez, Dinowitz, Dilan, Rosenthal, Wieder, Manktelow, Morinello, Angelino, Kassay, Colton, Lemondes, Griffin, Sempolinski, Stirpe, Durso, Mikulin, Shimsky   MLTSPNSR   Add Art 2 Title 2-F §245, Pub Health L   Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor. Go to top A01296 Actions: BILL NOA01296B   01/09/2025referred to health 01/29/2025amend and recommit to health 01/29/2025print number 1296a 02/04/2025reported referred to ways and means 05/27/2025reported referred to rules 05/29/2025reported 05/29/2025rules report cal.291 05/29/2025ordered to third reading rules cal.291 05/29/2025substituted by s1287a  S01287 AMEND=B PERSAUD  01/09/2025REFERRED TO HEALTH  01/30/2025AMEND AND RECOMMIT TO HEALTH  01/30/2025PRINT NUMBER 1287A  03/04/20251ST REPORT CAL.487  03/05/20252ND REPORT CAL.  03/10/2025ADVANCED TO THIRD READING  03/19/2025PASSED SENATE  03/19/2025DELIVERED TO ASSEMBLY  03/19/2025referred to ways and means  05/29/2025substituted for a1296a  05/29/2025ordered to third reading rules cal.291  01/07/2026died in assembly  01/07/2026returned to senate  01/07/2026REFERRED TO HEALTH  01/08/2026AMEND AND RECOMMIT TO HEALTH  01/08/2026PRINT NUMBER 1287B  02/04/20261ST REPORT CAL.283  02/05/20262ND REPORT CAL.  02/09/2026ADVANCED TO THIRD READING  02/10/2026PASSED SENATE  02/10/2026DELIVERED TO ASSEMBLY  02/10/2026referred to ways and means  03/10/2026substituted for a1296b  03/10/2026ordered to third reading cal.47  03/10/2026passed assembly  03/10/2026returned to senate  01/07/2026ordered to third reading cal.47  01/12/2026amended on third reading 1296b  03/10/2026substituted by s1287b   S01287 AMEND=B PERSAUD   01/09/2025REFERRED TO HEALTH   01/30/2025AMEND AND RECOMMIT TO HEALTH   01/30/2025PRINT NUMBER 1287A   03/04/20251ST REPORT CAL.487   03/05/20252ND REPORT CAL.   03/10/2025ADVANCED TO THIRD READING   03/19/2025PASSED SENATE   03/19/2025DELIVERED TO ASSEMBLY   03/19/2025referred to ways and means   05/29/2025substituted for a1296a   05/29/2025ordered to third reading rules cal.291   01/07/2026died in assembly   01/07/2026returned to senate   01/07/2026REFERRED TO HEALTH   01/08/2026AMEND AND RECOMMIT TO HEALTH   01/08/2026PRINT NUMBER 1287B   02/04/20261ST REPORT CAL.283   02/05/20262ND REPORT CAL.   02/09/2026ADVANCED TO THIRD READING   02/10/2026PASSED SENATE   02/10/2026DELIVERED TO ASSEMBLY   02/10/2026referred to ways and means   03/10/2026substituted for a1296b   03/10/2026ordered to third reading cal.47   03/10/2026passed assembly   03/10/2026returned to senate Go to topA01296 Committee Votes: Committee:HEALTH Chair:Paulin DATE:02/04/2025AYE/NAY:23/0 Action: Favorable refer to committee Ways and Means PaulinAyeJensenAye DinowitzAyeGandolfoAye RosenthalAyeBlumencranzAye HevesiExcusedGrayAye SteckAbsentMaherAye BraunsteinAyeSlaterAye SolagesAyeChludzinskiAye Bichotte HermelExcusedNorberAye SayeghAye McDonaldAye ReyesAye Gonzalez-RojasAye RajkumarAye ForrestAye KellesAye LucasAye MeeksAye LunsfordAye Committee:WAYS AND MEANS Chair:Pretlow DATE:05/27/2025AYE/NAY:30/2 Action: Favorable refer to committee Rules PretlowAyeRaAye GlickAyeFitzpatrickAye ColtonAyeHawleyAye CookAyeBlankenbushNay BenedettoAyePalmesanoAye WeprinAyeWalshNay RamosAyeDeStefanoAye BraunsteinAyeManktelowAye McDonaldAyeSmullenAye RozicAyeGiglioAye DinowitzAye MagnarelliAye BronsonAye DilanAbsent SeawrightAye HyndmanExcused WalkerExcused Bichotte HermelAye SimonAye CruzAye OtisAye SolagesAye HunterAye EpsteinAye SeptimoAye Committee:RULES Chair:Glick DATE:05/29/202
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