New York S 7857: Relates to the registration of autocycles

Bill Text

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S07857 Summary:

BILL NOS07857 

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SAME ASSAME AS A02516

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SPONSORMAYER

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COSPNSR

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MLTSPNSR

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Add §206-c, amd §207, Pub Health L

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Authorizes the department of health to establish a program for familial dysautonomia, Canavan's and Tay-Sachs disease screening and counseling and to provide grants and to enter into contracts with public and non-profit private entities to assist in such program; provides that participation in such program shall be voluntary and all information shall be confidential.

Go to top S07857 Actions:

BILL NOS07857 

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05/09/2025REFERRED TO HEALTH

01/07/2026REFERRED TO HEALTH

Go to topS07857 Committee&nbspVotes:

Go to topS07857 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topS07857 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 7857

 2025-2026 Regular Sessions

 IN SENATE

 May 9, 2025
 ___________

 Introduced by Sen. MAYER -- read twice and ordered printed, and when
 printed to be committed to the Committee on Health

 AN ACT to amend the public health law, in relation to the establishment
 of a program for familial dysautonomia, Canavan's disease and Tay-
 Sachs disease screening and counseling

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. The public health law is amended by adding a new section
 2 206-c to read as follows:
 3 § 206-c. Program for familial dysautonomia, Canavan's disease and
 4 Tay-Sachs disease screening and counseling. 1. The commissioner shall
 5 establish within the department, within amounts appropriated therefor, a
 6 program for familial dysautonomia, Canavan's disease and Tay-Sachs
 7 disease screening and counseling for the purposes of establishing volun-
 8 tary familial dysautonomia, Canavan's disease and Tay-Sachs disease
 9 screening and counseling programs, primarily through other existing
 10 health programs.
 11 2. The commissioner may make grants to and enter into contracts with
 12 public and nonprofit private entities for the establishment and opera-
 13 tion of programs under this section. The commissioner shall promulgate
 14 regulations pursuant to this section. In making grants authorized under
 15 this section the commissioner shall give priority to programs that:
 16 (a) provide services first to blood relatives of known familial
 17 dysautonomia, Canavan's disease or Tay-Sachs disease victims, and second
 18 to high-risk population groups in which familial dysautonomia, Canavan's
 19 disease and Tay-Sachs disease occur with greatest frequency and
 20 especially to those persons in such groups who are entering their child-
 21 bearing years; and
 22 (b) operate in areas which the commissioner determines to have the
 23 greatest number of persons in need of the screening and counseling
 24 services provided under such programs.

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD04449-01-5

 S. 7857 2

 1 3. The participation by any individual in any program under this
 2 section shall be wholly voluntary and shall not be a prerequisite to
 3 eligibility for, or receipt of, any other service or assistance from, or
 4 to participation in, any other program. All test results, medical
 5 records and any other information regarding familial dysautonomia,
 6 Canavan's disease and Tay-Sachs disease screening or counseling acquired
 7 or made by a public or private entity or an individual under this
 8 section shall be kept confidential and shall not be admissible as
 9 evidence in an action or proceeding in any court or before any other
 10 tribunal, board, agency or person; provided, however, that the
 11 provisions of this subdivision shall not apply to:
 12 (a) such information as the patient, or their guardian, consents to be
 13 released; or
 14 (b) statistical data compiled without reference to the identity of any
 15 such patient; or
 16 (c) such information as is released by written order of a court of
 17 competent jurisdiction, issued by such court after receipt of an appli-
 18 cation on appropriate notice and an opportunity for all relevant parties
 19 to be heard, showing good cause for the following reasons:
 20 (i)