Illinois HR 33: SPINAL ATROPHY AWARENESS MONTH
Status: Resolution Adopted (as of 2025-05-27)
State: Illinois · Session: 104th · Bill: HR 33
Sponsors: Dan Swanson, Amy Briel, Charles Meier, Jackie Haas, Nicolle Grasse, Norine K. Hammond, Suzanne M. Ness
Bill Text
• Illinois General Assembly - Full Text of HR0033 • • • • • • • • • • • • Select Language × The Illinois General Assembly offers the Google Translate™ service for visitor convenience. In no way should it be considered accurate as to the translation of any content herein. Visitors of the Illinois General Assembly website are encouraged to use other translation services available on the internet. The English language version is always the official and authoritative version of this website. NOTE: To return to the original English language version, select the "Show Original" button on the Google Translate™ menu bar at the top of the window. Choose Language English Afrikaans Albanian Arabic Armenian Azerbaijani Basque Bengali Bosnian Catalan Croatian Czech Danish Dutch Esperanto Estonian Filipino Finnish French Galician Georgian German Greek Gujarati Haitian Creole Hausa Hawaiian Hebrew Hindi Hungarian Icelandic Indonesian Interlingua Interlingue Inuktitut Irish Italian Japanese Javanese Kannada Khmer Korean Latin Latvian Lithuanian Luxembourgish Macedonian Malagasy Malayalam Maltese Maori Marathi Myanmar Nepali Norwegian Odia Pashto Punjabi Romanian Russian Samoan Sango Sanskrit Sardinian Sindhi Sinhala Slovak Slovenian Somali Southern Sotho Spanish Sundanese Swahili Swedish Tamil Telugu Thai Tigrinya Tonga Turkish Ukrainian Urdu Vietnamese Welsh Xhosa Yiddish Yoruba Zulu Powered by Translate Close Illinois General Assembly Top Navigation Bar Translate Learn Select General Assembly Search the 104th General Assembly Enter search terms for legislation, members, committees, or schedules. ILGA.GOV • • LEGISLATION & LAWS • Bills & Resolutions • Public Acts • Illinois Compiled Statutes • Illinois Constitution • Search Legislation • Glossary • Guide • Reports & Inquiry • Legislative Reports • Special Reports • FTP Site • Legislator Lookup • Capitol Complex Phone Numbers • Rules & Regulations • Illinois Register • Administrative Rules • Senate • Members • Schedules • Committees • Request for Remote Testimony • Journals • Transcripts • Rules • Audio/Video • FOIA Information • Senate Employment Opportunities • Media Guidelines • House • Members • Schedules • Committees • Submit testimony for House Committees • Journals • Transcripts • Rules • Audio/Video • FOIA Information • House Employment Opportunities • Log In Mobile Top Bar Search the 104th General Assembly Enter keywords to search the Illinois General Assembly website. Full Text of HR0033 • Home • Legislation • Full Text HR0033 - 104th General Assembly • Bill Status • Full Text • Votes • Witness Slips Select Menu Bill Status Full Text Votes Witness Slips Printer Friendly Version Introduced Printer Friendly Version Introduced Open PDF HR0033LRB104 04426 LAW 14453 r 1HOUSE RESOLUTION 2 WHEREAS, The members of Illinois House of Representatives 3wish to raise awareness surrounding the rare disease of spinal 4muscular atrophy; and 5 WHEREAS, Spinal muscular atrophy is a degenerative, 6genetic neurological condition that affects and prevents 7motor-control neurons from sending signals from the central 8nervous system to the body's muscles, causing the loss of 9muscle control and ultimately muscle wasting; and 10 WHEREAS, Spinal muscular atrophy is a rare genetic 11neuromuscular disease; and 12 WHEREAS, In the United States, an estimated one in 11,000 13babies are born with spinal muscular atrophy; and 14 WHEREAS, There are four types of spinal muscular atrophy, 15the most severe of which may require a ventilator and feeding 16tubes; and 17 WHEREAS, Spinal muscular atrophy affects everyone 18differently, and symptoms can vary greatly according to the 19age of onset and the severity of the disease; and HR0033- 2 -LRB104 04426 LAW 14453 r 1 WHEREAS, Those who suffer from spinal muscular atrophy 2have normally developed brains and are bright, sensitive, and 3full of life despite their diagnosis; and 4 WHEREAS, Unlike many other rare neuromuscular diseases, 5there is a clear understanding of the specific genetic cause 6of spinal muscular atrophy; and 7 WHEREAS, Ongoing research offers the promise that a cure 8for spinal muscular atrophy may one day be found; and 9 WHEREAS, Increased awareness of spinal muscular atrophy 10will lead to increased knowledge and support for both disease 11research and the families affected by the disease; therefore, 12be it 13 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 14HUNDRED F
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