New York J 1383: Commemorating the 34th Anniversary of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day in the State of New York

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 Speaker Carl E. Heastie

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J01383 Summary:

BILL NOJ01383 

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SAME ASNo Same As

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SPONSORPERSAUD

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COSPNSR

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MLTSPNSR

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Go to top J01383 Actions:

BILL NOJ01383 

&nbsp

01/12/2026REFERRED TO FINANCE

01/21/2026REPORTED TO CALENDAR FOR CONSIDERATION

01/21/2026ADOPTED

Go to topJ01383 Committee&nbspVotes:

Go to topJ01383 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topJ01383 Text:

Senate Resolution No. 1383

BY: Senator PERSAUD

 COMMEMORATING the 34th Anniversary of Myalgic
 Encephalomyelitis/Chronic Fatigue Syndrome Awareness
 Day in the State of New York

 WHEREAS, It is the custom of this Legislative Body to recognize
official days that are set aside to increase awareness of serious
illnesses that affect the lives of citizens of New York State; and

 WHEREAS, Attendant to such concern, and in full accord with its
long-standing traditions, this Legislative Body is justly proud to
commemorate the 34th Anniversary of Myalgic Encephalomyelitis/Chronic
Fatigue Syndrome Awareness Day in the State of New York; and

 WHEREAS, International Myalgic Encephalomyelitis/Chronic Fatigue
Syndrome (ME/CFS) Awareness Day is observed every year on May 12th to
support and recognize people with this disease and other chronic
immunological and neurological diseases by raising awareness and
providing useful information; and

 WHEREAS, On May 12, 2026, people from across the world are
encouraged to wear blue to raise awareness and show support for people
with ME/CFS, their families and caregivers, and researchers who study
this disease; and

 WHEREAS, ME/CFS is a serious, long-term illness that affects
multiple body systems; people with this illness suffer from inability to
perform usual activities associated with extreme fatigue,
post-exertional malaise or PEM, sleep problems, and other problems with
thinking and concentrating, pain, and dizziness; and

 WHEREAS, In 2018, it was reported 1 to 2.5 million Americans of all
ages, races and genders are living with ME/CFS, and approximately
62,000-152,000 people in New York; and

 WHEREAS, Myalgic Encephalomyelitis persists for years or decades due
to a lack of treatments, leaving 25% of patients housebound or bedbound,
with many students unable to attend school and 75%-85% of patients
unable to work, costing the economy of New York State millions of
dollars; and

 WHEREAS, The National Academy of Medicine noted a lack of knowledge
about the disease due to a lack of research and funding for research,
owing largely to a lack of awareness of the disease; and

 WHEREAS, The National Academy of Medicine stated that as a result of
this lack of awareness and research, many patients encounter medical
professionals who doubt the existence of their disease and have
tremendous difficulty being properly diagnosed and accessing appropriate
medical care; and

 WHEREAS, ME/CFS is a tragic, disabling disease which destroys the
lives of many patients and imposes a severe toll on their families,
friends, and caretakers; and

 WHEREAS, It is imperative that there be greater awareness of this
serious health condition, and more must be done to increase awareness
and funding at the local, State, and National levels; now, therefore, be
it

 RESOLVED, That this Legislative Body pause in its deliberations to
commemorate the 34th Anniversary of Myalgic Encephalomyelitis/Chronic
Fatigue Syndrome Awareness Day in the State of New York.

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