New York A 5977: Enacts Paige's law

Bill Text

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A05977 Summary:

BILL NOA05977 

&nbsp

SAME ASSAME AS S01894

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SPONSORFitzpatrick

&nbsp

COSPNSRBrown E, DeStefano, Gandolfo, Giglio, Bendett, Lemondes, McDonough, Mikulin, Palmesano, Smullen,
 Tague

&nbsp

MLTSPNSR

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Amd §§2500-a & 206, add §§2500-n & 3055, Pub Health L; add §§3001-e & 926, Ed L; amd §840, add §214-j, Exec L

&nbsp

Enacts Paige's law to provide education and awareness regarding brain arteriovenous malformation and brain aneurysms, as well as information on being a potential carrier of hereditary hemorrhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome and related disorders and genetic testing for such conditions and disorders.

Go to top A05977 Actions:

BILL NOA05977 

&nbsp

02/25/2025referred to health

01/07/2026referred to health

Go to topA05977 Committee&nbspVotes:

Go to topA05977 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topA05977 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 5977

 2025-2026 Regular Sessions

 IN ASSEMBLY

 February 25, 2025
 ___________

 Introduced by M. of A. FITZPATRICK, E. BROWN, DeSTEFANO, GANDOLFO,
 GIGLIO, BENDETT, LEMONDES, McDONOUGH, MIKULIN, PALMESANO, SMULLEN,
 TAGUE -- read once and referred to the Committee on Health

 AN ACT to amend the public health law, the education law and the execu-
 tive law, in relation to enacting Paige's law

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. Short title. This act shall be known and may be cited as
 2 "Paige's law".
 3 § 2. Subdivision 1 of section 2500-a of the public health law is
 4 amended by adding a new paragraph (l) to read as follows:
 5 (l) Hereditary hemorrhagic telangiectasia and thoracic aortic aneu-
 6 rysms and dissections through gene sequencing, Marfan syndrome and
 7 related disorders.
 8 § 3. The public health law is amended by adding a new section 2500-n
 9 to read as follows:
 10 § 2500-n. Hereditary hemorrhagic telangiectasia, thoracic aortic aneu-
 11 rysms, Marfan syndrome and related disorders prenatal screening aware-
 12 ness. 1. As used in this section, "health care practitioner" means a
 13 medical professional that provides prenatal care.
 14 2. A health care practitioner caring for a pregnant person shall
 15 provide to such person materials promulgated by the commissioner which
 16 include information on being a potential carrier of hereditary hemor-
 17 rhagic telangiectasia, thoracic aortic aneurysms, Marfan syndrome and
 18 related disorders and the availability and options for prenatal screen-
 19 ing for such conditions and disorders.
 20 § 4. The education law is amended by adding a new section 3001-e to
 21 read as follows:
 22 § 3001-e. Brain arteriovenous malformation, brain aneurysm and stroke
 23 awareness and response training. 1. (a) Teachers shall annually complete
 24 a course or training in the identification of and response to a pupil

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD03700-01-5

 A. 5977 2

 1 experiencing a brain arteriovenous malformation, brain aneurysm or
 2 stroke.
 3 (b) Documentation showing the successful completion of the instruction
 4 required pursuant to this section shall be kept in such teacher's
 5 personnel file.
 6 2. The training required pursuant to this section may be performed by
 7 the registered nurse at the school in which the teacher is hired to work
 8 or by a recognized training program approved by the commissioner through
 9 any method available, including but not limited to courses online or in
 10 person.
 11 § 5. Section 206 of the public health law is amended by adding a new
 12 subdivision 32 to read as follows:
 13 32. The commissioner, in consultation with the municipal police train-
 14 ing council and the superintendent of state police, shall develop a
 15 training program and associated training materials to be given annually,
 16 to provide instruction and information to police officers and emergency
 17 medical services personnel on protocols for the identification of and
 18 response to an individual experiencing a brain arteriovenous malforma-
 19 tion, brain aneurysm