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 |Add To My Favorites |Track Bill | Version: 07/03/25 - Chaptered
 07/01/25 - Enrolled
 03/04/25 - Introduced

 SCR-33 GM1 Gangliosidosis Awareness Day.(2025-2026)

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SCR33:v97#DOCUMENTBill Start

 Senate Concurrent Resolution

 No. 33

 CHAPTER 112

 Relative to GM1 Gangliosidosis Awareness Day. 

 [
 Filed with

 Secretary of State
 July 03, 2025.
 ]

LEGISLATIVE COUNSEL'S DIGEST

SCR 33, Padilla.
 GM1 Gangliosidosis Awareness Day.

This measure would declare May 23, 2025, as GM1 Gangliosidosis Awareness Day in California.

Digest Key

 Fiscal Committee:
 NO 

Bill Text

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and

WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and

WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2025, as GM1 Gangliosidosis Awareness Day in California; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.