Illinois HR 796: M.E. AWARENESS DAY

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HR0796LRB104 21382 ECR 36332 r

1HOUSE RESOLUTION

2 WHEREAS, Myalgic Encephalomyelitis (ME), also known as 

3Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 

4is a serious, complex, and chronic disease that affects 

5multiple body systems, including the neurological, immune, and 

6metabolic systems; and

7 WHEREAS, ME affects up to nine million Americans, 

8including over 100,000 Illinoisans, and is characterized by 

9symptoms such as post-exertional malaise, debilitating 

10fatigue, cognitive dysfunction, and immune and autonomic 

11nervous system dysregulation that substantially limit an 

12individual's ability to carry out ordinary daily activities; 

13and

14 WHEREAS, Approximately 25% of individuals affected by ME 

15are housebound or bed-bound, and an estimated 75% are unable 

16to sustain employment or education due to the severity of 

17their illness; almost all people with ME experience profound 

18limitations in performing usual daily activities; and

19 WHEREAS, Individuals living with ME often experience a 

20significant decline in quality of life and may face challenges 

21accessing timely diagnosis, appropriate medical care, 

22workplace accommodations, and social support; and

HR0796- 2 -LRB104 21382 ECR 36332 r

1 WHEREAS, ME remains widely under-recognized and 

2misunderstood with up to 91% of people with ME remaining 

3undiagnosed, and even those with the diagnosis often face 

4limited treatment options and inadequate systemic supports, 

5thereby jeopardizing the safety, well-being, and economic 

6security of affected individuals and their families; and

7 WHEREAS, Due to limited public awareness and lingering 

8misconceptions about the nature and severity of ME, many 

9patient