Illinois HR 468: CONGRATS-CHIEF ALAN STOECKEL

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HR0468LRB104 15327 ECR 28481 r

1HOUSE RESOLUTION

2 WHEREAS, The National Institutes of Health reports that an 

3estimated 105,500 people in the United States are diagnosed 

4with Primary Biliary Cholangitis (PBC), a rare, chronic 

5autoimmune disease that damages the bile ducts in the liver, 

6leading to scarring, cirrhosis, liver failure, or the need for 

7transplantation if left untreated; and

8 WHEREAS, More than 130,000 Americans, including 

9approximately 4,000 Illinois residents, are estimated to be 

10living with PBC; women are disproportionately affected by PBC, 

11making up 90% of cases, and are often diagnosed between the 

12ages of 30 and 60; and

13 WHEREAS, While advances in treatment now enable many 

14people with PBC to achieve a normal life expectancy, the 

15disease continues to cause significant fatigue, itchiness, and 

16other symptoms that severely impact quality of life; and

17 WHEREAS, Early detection and timely referral to 

18specialists remain essential to effective treatment and 

19management of PBC, yet many patients face delays in diagnosis 

20and limited access to knowledgeable care; and

21 WHEREAS, The Friends of the PBC Foundation, NFP, in 

HR0468- 2 -LRB104 15327 ECR 28481 r

1partnership with the international PBC Foundation and patient 

2advocacy groups worldwide, provides education, peer support, 

3and advocacy to ensure no one living with PBC feels alone; and

4 WHEREAS, The Friends of the PBC Foundation's theme for the 

52025 PBC Awareness campaign, "You Are Not Alone", reflects the 

6global commitment to building community, supporting patients, 

7and accelerating research toward improved treatments and, 

8ultimately, a cure for PBC; and

9 WHEREAS, September has been de