New Jersey A 3365: Makes supplemental appropriation of $500,000 to DOH for Huntington's Disease Grant Program.

Bill Text

A3365 

ASSEMBLY, No. 3365 

STATE OF NEW JERSEY

222nd LEGISLATURE

� 

PRE-FILED FOR INTRODUCTION IN THE 2026 SESSION

Sponsored by:

Assemblyman STERLEY S. STANLEY

District 18 (Middlesex)

Assemblyman SEAN T. KEAN

District 30 (Monmouth and Ocean)

Co-Sponsored by:

Assemblymen Danielsen, Bergen, Scharfenberger, 
Assemblywomen Flynn, Donlon, Assemblymen Karabinchak, Barlas, DePhillips, 
Assemblywomen Speight and Rowan

SYNOPSIS

���� Makes supplemental appropriation of $500,000 to DOH 
for Huntington's Disease Grant Program.

CURRENT VERSION OF TEXT 

���� Introduced Pending Technical Review by Legislative 
Counsel.

��

A 
Supplement to the annual appropriations act 
for the fiscal year ending June 30, 2025, P.L.2024, c.22.

���� Be It 
Enacted by the Senate and the General Assembly 
of the State of New Jersey:

���� 1.��� In addition to the 
amounts appropriated under P.L.2024, c.22, the annual appropriations act for 
the fiscal year ending June 30, 2025, there is appropriated from the General 
Fund the following amount for the purpose specified:

46 DEPARTMENT OF HEALTH

20 Physical and Mental Health

21 Health Services

4285 Division of Community Health

GRANTS-IN-AID

05-4285� Community Health 
Services .................................. $500,000

���������������� Total 
Grants-in-Aid appropriation,��������������������������������������� 

������������������ Health 
Services .................................................... $500,000

Grants-in-Aid:

�������� 05��� Huntington�s 
Disease Grant Program..... ($500,000)

The amount hereinabove 
appropriated for the Huntington Disease Grant Program, in addition to any other 
State or federal funds allocated for the following purposes, shall be allocated 
to support grants to institutions of higher education, non-profit organizations, 
or New Jersey based and operated research organizations for the provision of 
pre-symptomatic testing, neurology and psychiatry services, neurophysiological 
evaluations, treatment, disease management, and counseling for people living 
with or at risk for Huntington's Disease.

���� 2.��� This act shall take 
effect immediately.

STATEMENT

����� This bill makes a supplemental appropriation of 
$500,000 to Division of Community Health in the Department of Health (DOH) for 
the Huntington�s Disease Grant Program.� The amount appropriated under the 
bill, in addition to any other State or federal funds allocated for the same 
purposes, is to be allocated to support grants to institutions of higher 
education, non-profit organizations, or New Jersey based and operated research 
organizations for the provision of pre-symptomatic testing, neurology and psychiatry 
services, neurophysiological evaluations, treatment, disease management, and 
counseling for people living with or at risk for Huntington's disease.� 
According to the department�s Notice of Fund Availability, the Huntington�s 
Disease Grant Program is currently estimated to distribute $ 201,000 in FY� 
2025.� This supplemental appropriation would increase that amount to $ 
701,000.� 

���� Huntington's disease is a fatal rare, inherited 
disease that causes the progressive breakdown of nerve cells in the brain.� It 
deteriorates a person�s physical and mental abilities during their prime 
working years and has no cure.� Huntington's disease has a wide impact on a 
person's functional abilities and usually results in movement, cognitive, and 
psychiatric disorders.� Many describe the symptoms as similar to having 
amyotrophic lateral sclerosis (Lou Gehrig's disease), Parkinson�s disease, and 
Alzheimer�s disease simultaneously. According to the DOH, there are 
approximately 900 to 1,200 New Jersey residents who are living with 
Huntington�s disease. The incidence of the disease is estimated between 1 in 
8,000 and 1 in 10,000 State residents.� There are also about 7,000 at-risk 
individuals in New Jersey.� But since this is a fatal disease, this number may 
be low since the majority of people who go through genetic counseling decide to 
not get tested.