New York A 10569: Establishes pediatric palliative care centers

Bill Text

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A10569 Summary:

BILL NOA10569A

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SAME ASNo Same As

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SPONSORPaulin

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COSPNSRSchiavoni, Simon, Kassay, Jensen, De Los Santos, McDonald, Giglio, Fitzpatrick, Gandolfo, Stern,
 Griffin, Reyes, Durso

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MLTSPNSR

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Add §2801-i, amd §2807, Pub Health L

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Enacts the "pediatric palliative care center act" to establish a demonstration program for pediatric palliative care centers for up to five not-for-profits to provide palliative care to individuals who are under twenty-one years of age, have been diagnosed with a chronic, complex, life-threatening illness that is expected to shorten their life expectancy, and is not expected to survive past twenty-one years of age; authorizes the establishment or approval of a rate methodology.

Go to top A10569 Actions:

BILL NOA10569A

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03/13/2026referred to health

06/04/2026amend (t) and recommit to health

06/04/2026print number 10569a

Go to topA10569 Committee&nbspVotes:

Go to topA10569 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topA10569 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 10569--A

 IN ASSEMBLY

 March 13, 2026
 ___________

 Introduced by M. of A. PAULIN, SCHIAVONI, SIMON, KASSAY, JENSEN,
 DE LOS SANTOS, McDONALD, GIGLIO, FITZPATRICK, GANDOLFO, STERN, GRIF-
 FIN, REYES, DURSO -- read once and referred to the Committee on Health
 -- committee discharged, bill amended, ordered reprinted as amended
 and recommitted to said committee

 AN ACT to amend the public health law, in relation to establishing a
 demonstration program for pediatric palliative care centers; authoriz-
 ing a rate methodology for pediatric palliative care centers; and
 providing for the repeal of such provisions upon expiration thereof

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. Short title. This act shall be known as the "pediatric
 2 palliative care center act".
 3 § 2. The public health law is amended by adding new section 2801-i to
 4 read as follows:
 5 § 2801-i. Pediatric palliative care center demonstration program. 1.
 6 For the purposes of this section (a) "Pediatric palliative care patient"
 7 means an individual who:
 8 (i) is under twenty-one years of age;
 9 (ii) has been diagnosed with a chronic, complex, life-threatening
 10 illness that is expected to shorten the individual's life expectancy;
 11 and
 12 (iii) is not expected to survive past twenty-one years of age.
 13 (b) "Pediatric palliative care" means patient and family centered
 14 interdisciplinary care provided to those under twenty-one years of age
 15 with serious, complex, chronic, life-limiting, or life-threatening
 16 medical conditions for the purpose of preventing and relieving suffering
 17 and improving quality of life. Care may be provided concurrently with
 18 curative, restorative, disease directed, or life prolonging treatment
 19 and if appropriate regardless of prognosis or life expectancy.
 20 2. (a) Notwithstanding any other provision of law, the department
 21 shall establish a pediatric palliative care center demonstration
 22 program, of up to five not-for-profit entities, to evaluate the delivery
 23 of pediatric palliative care centers services and their efficacy.

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD14516-12-6

 A. 10569--A 2

 1 (b) Such demonstration centers shall be limited in size by the depart-
 2 ment after considering the need of the demonstration catchment area. The
 3 department shall also consider the placement of the centers based on an
 4 estimated number of pediatric palliative care patients in the particular
 5 area and the availability of other services in the area.
 6 (c) Before approving a not-for-profit entity for the demonstration
 7 program under this section, the commissioner shall be satisfied with the
 8 character and competence of such entity. The commissioner shall take
 9 into consideration any experience with the department and other state
 10 agencies.
 11 3. (a) A pediatric palliative care center approved to operate under
 12 this section shall be eligible for federal funding to the extent possi-
 13 ble.
 14 (b) Hospice services p