Connecticut HB 5322: AN ACT CONCERNING A WORKING GROUP REGARDING ENDOMETRIOSIS.

Bill Text

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General Assembly Substitute Bill No. 5322
February Session, 2026

AN ACT CONCERNING A WORKING GROUP REGARDING
ENDOMETRIOSIS.
Be it enacted by the Senate and House of Representatives in General
Assembly convened:

Section 1. (NEW) (Effective from passage) (a) There is established a 1
working group regarding endometriosis for the purpose of evaluating 2
and making recommendations regarding the diagnosis, treatment, 3
research, education and public awareness of endometriosis in the state. 4
The working group shall be within the Legislative Department. The 5
working group shall evaluate the following: 6
(1) The prevalence and impact of endometriosis on residents of the 7
state; 8
(2) Barriers to timely and accurate diagnosis of endometriosis; 9
(3) Access to evidence-based treatment for endometriosis, including, 10
but not limited to, medical, surgical and therapeutic interventions; 11
(4) Insurance coverage and reimbursement practices for the 12
treatment of endometriosis; 13
(5) The impact of endometriosis in the workplace, including, but not 14
limited to, leave, accommodations and employment protections; 15

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(6) Gaps in public and provider education and training concerning 16
endometriosis; and 17
(7) Opportunities to improve endometriosis data collection, research 18
initiatives and patient outcomes. 19
(b) The working group shall consist of the following members, who 20
shall be appointed not later than thirty days after the effective date of 21
this section: 22
(1) Four appointed by the speaker of the House of Representatives, 23
one of whom shall be a member of the House or Representatives, one of 24
whom shall be a physician licensed pursuant to chapter 370 of the 25
general statutes with demonstrated experience in the diagnosis and 26
treatment of endometriosis, one of whom shall be a representative of a 27
federally qualified health center and one of whom shall be an individual 28
residing in the state who has been diagnosed with endometriosis; 29
(2) Four appointed by the president pro tempore of the Senate, one of 30
whom shall be a member of the Senate, one of whom shall be a physician 31
licensed pursuant to chapter 370 of the general statutes who is a member 32
of the American College of Obstetricians and Gynecologists, one of 33
whom shall be a researcher affiliated with an academic or research 34
institution in the state with expertise in endometriosis and one of whom 35
shall be a patient advocate with experience advocating on behalf of 36
individuals with endometriosis; 37
(3) Four appointed by the minority leader of the House of 38
Representatives, one of whom shall be a member of the House of 39
Representatives, one of whom shall be a pediatric or an adolescent 40
medicine physician licensed pursuant to chapter 370 of the general 41
statutes and currently practicing in the state, one of whom shall be an 42
individual in the state with expertise in racial and health equity or who 43
represents a community-based organization serving historically 44
underserved populations and one of whom shall be a representative of 45
an association of hospitals in the state or an administrator of a hospital 46
in the state; 47

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(4) Four appointed by the minority leader of the Senate, one of whom 48
shall be a member of the Senate, one of whom shall be a representative 49
of a school-based health center in the state, one of whom shall be a 50
representative of a therapeutic or pharmaceutical manufacturer with 51
experience in treatments related to endometriosis and one of whom 52
shall be an individual residing in the state who has been diagnosed with 53
endometriosis; 54
(5) The Commissioner of Public Health, or the commissioner's 55
designee; 56
(6) The Insurance Commissioner, or the commissioner's designee; 57
and 58
(7) The cochairpersons of the endometriosis data and biorepository 59
program established pursuant to section 10a-132f of the general statutes. 60
(c) Except for members of the General Assembly, members who 61
represent state agencies and the cochairpersons of the endometriosis 62
data and biorepository program, six of the members first appointed 63
shall serve for a term of two years, six of such members shall serve for a 64
term of three years and, thereafter, members shall serve for a term of 65
two years. The executive director of the Commission on Women, 66
Children, Seniors, Equity and Opportunity shall determine which of the 67
members first appointed shall serve for a term of two years and which 68
of such members shall serve for a term of three years. Any vacancy shall 69
be filled by the appointing authority not later than thirty calendar days 70
after the appointment becomes vacant. Any member previously 71
appointed to the working group may be reappointed. The members of 72
the working group shall receive no compensation for their services but 73
may be reimbursed for any necessary expenses in