Florida SB 1554: Public Safety

Bill Text

1554 
Public Records/Experimental Treatment Outcomes 
2026-01-09T03:27:16Z 
Providing an exemption from public records requirements for certain information contained in a public report published by the Department of Health relating to experimental treatment outcomes and safety signals; providing a statement of public necessity, etc. 
Original Filed Version 
2026 
S 
GB 
General Bill 
__ 

 Florida Senate - 2026 SB 1554 

 By Senator Burgess 

 23-01615A-26 20261554__ 
 1 A bill to be entitled 
 2 An act relating to public records; amending s. 
 3 499.0295, F.S.; providing an exemption from public 
 4 records requirements for certain information contained 
 5 in a public report published by the Department of 
 6 Health relating to experimental treatment outcomes and 
 7 safety signals; providing a statement of public 
 8 necessity; providing a contingent effective date. 
 9 
 10 Be It Enacted by the Legislature of the State of Florida: 
 11 
 12 Section 1. Paragraph (c) of subsection (6) of section 
 13 499.0295, Florida Statutes, as amended by SB ____, 2026 Regular 
 14 Session, is amended to read: 
 15 499.0295 Experimental treatments for terminal conditions 
 16 and life-threatening rare diseases.— 
 17 (6) 
 18 (c) The department shall annually publish a public report 
 19 of experimental treatment outcomes and safety signals in the 
 20 aggregate. The health information and proprietary pricing 
 21 information contained in the report is confidential and exempt 
 22 from s. 119.07(1) and s. 24(a), Art. I of the State 
 23 Constitution. 
 24 Section 2. The Legislature finds that it is a public 
 25 necessity that the health information and proprietary pricing 
 26 information contained in the annual public report of 
 27 experimental treatment outcomes and safety signals under s. 
 28 499.0295, Florida Statutes, be made confidential and exempt from 
 29 s. 119.07(1), Florida Statutes, and s. 24(a), Article I of the 
 30 State Constitution. The Legislature finds that the release of 
 31 such information could harm patients with terminal conditions or 
 32 life-threatening rare diseases by exposing extremely sensitive 
 33 personal health data. The Legislature further finds that 
 34 patients who pursue experimental treatments under the Promising 
 35 Pathways Act have a strong expectation of privacy regarding 
 36 their medical information and that the potential harm resulting 
 37 from disclosure of such information outweighs any public benefit 
 38 that may be derived from its release. 
 39 Section 3. This act shall take effect on the same date that 
 40 SB ____ or similar legislation takes effect, if such legislation 
 41 is adopted in the same legislative session or an extension 
 42 thereof and becomes a law.