Illinois HR 609: ALS AWARENESS MONTH

Status: Added Co-Sponsor Rep. Jackie Haas (as of 2026-05-14)

State: Illinois · Session: 104th · Bill: HR 609

Sponsors: Amy Elik, Adam M. Niemerg, Amy Briel, Christopher "C.D." Davidsmeyer, Daniel Didech, Dave Severin, Jackie Haas, Janet Yang Rohr, Jeff Keicher, Jennifer Sanalitro, Kevin Schmidt, Michelle Mussman, Natalie A. Manley, Regan Deering, Stephanie A. Kifowit, Suzanne M. Ness, Tracy Katz Muhl

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HR0609LRB104 19159 LAW 32604 r

1HOUSE RESOLUTION

2 WHEREAS, A greater awareness of fatal diseases that 

3continue to plague our population is needed; and

4 WHEREAS, Amyotrophic lateral sclerosis (ALS), also known 

5as Lou Gehrig's disease, is a devastating and fatal 

6neurodegenerative condition in which a person's brain loses 

7connection with the muscles due to the destruction of motor 

8neurons; and

9 WHEREAS, The destruction of motor neurons that ALS causes 

10leads to complete paralysis and, in most cases, death within 

11five years of diagnosis; and

12 WHEREAS, Though their minds are unaffected, people living 

13with ALS lose the ability to walk, talk, eat, and eventually 

14breathe; they are confined to a fate where, as their 

15independence fades, they must rely entirely on caregivers to 

16provide round-the-clock aid as the disease reaches its more 

17advanced stages; and

18 WHEREAS, ALS currently has no known cure, and the exact 

19causes are unknown; and

20 WHEREAS, Military veterans are disproportionately affected 

HR0609- 2 -LRB104 19159 LAW 32604 r

1by ALS, and multiple studies show that they are more likely to 

2develop and die from the disease than the general population; 

3and

4 WHEREAS, Securing access to new therapies, durable medical 

5equipment, and communication technologies is of vital 

6importance to people living with ALS; clinical trials also 

7play a pivotal role in evaluating new treatments, enhancing 

8quality of life, and fostering assistive technologies for 

9those living with ALS; and

10 WHEREAS, To truly confront ALS, awareness must be raised, 

11and policies should reflect the urgent needs of those living 

12with this disease as increased advocacy and legislative 

1

View Illinois HR 609 on LegisTrack → — full text, sponsors, votes, campaign finance, and cross-state matches.