New York A 7845: Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

Status: SIGNED CHAP.478 (as of 2025-10-17)

State: New York · Session: 2025-2026 · Bill: A 7845

Sponsors: Steve Stern, Harvey Epstein, MaryJane Shimsky, Micah Lasher, Nader Sayegh, Rebecca Seawright, Steven Otis

Bill Text

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A07845 Summary:

BILL NOA07845 

&nbsp

SAME ASSAME AS S06413

&nbsp

SPONSORStern

&nbsp

COSPNSRSeawright, Shimsky, Epstein, Sayegh, Lasher, Otis

&nbsp

MLTSPNSR

&nbsp

Add Art 20-C §§2020 - 2024, Pub Health L

&nbsp

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.

Go to top A07845 Actions:

BILL NOA07845 

&nbsp

04/11/2025referred to health

05/19/2025reported referred to codes

05/28/2025reported referred to ways and means

05/29/2025reported referred to rules

06/06/2025reported 

06/06/2025rules report cal.455

06/06/2025ordered to third reading rules cal.455

06/06/2025passed assembly

06/06/2025delivered to senate

06/06/2025REFERRED TO RULES

06/10/2025SUBSTITUTED FOR S6413

06/10/20253RD READING CAL.1540

06/10/2025PASSED SENATE

06/10/2025RETURNED TO ASSEMBLY

10/09/2025delivered to governor

10/17/2025signed chap.478

Go to topA07845 Committee&nbspVotes:

Committee:HEALTH Chair:Paulin 
DATE:05/19/2025AYE/NAY:24/0 Action: Favorable refer to committee Codes PaulinAyeJensenAye

DinowitzAyeGandolfoAye

RosenthalAyeBlumencranzAye

HevesiAyeGrayAye

SteckAyeMaherAye

BraunsteinAyeSlaterAye

SolagesAyeChludzinskiAye

Bichotte HermelExcusedNorberAye

SayeghAye

McDonaldAye

ReyesAye

Gonzalez-RojasAye

RajkumarAye

ForrestAye

KellesAye

LucasAbsent

LavineAye

LunsfordAye

Committee:CODES Chair:Dinowitz 
DATE:05/28/2025AYE/NAY:21/0 Action: Favorable refer to committee Ways and Means DinowitzAyeMorinelloAye

CookAyeReillyAye

SimonAyeMikulinAye

WeprinAyeTannousisAye

HevesiAyeAngelinoAye

SeawrightAyeMolitorAye

RosenthalAye

WalkerAye

VanelAye

CruzAye

EpsteinAye

BoresAye

ReyesAye

CunninghamAbsent

RomeroAye

AlvarezAye

Committee:WAYS AND MEANS Chair:Pretlow 
DATE:05/29/2025AYE/NAY:34/0 Action: Favorable refer to committee Rules PretlowAyeRaAye

GlickAyeFitzpatrickAye

ColtonAyeHawleyAye

CookAyeBlankenbushAye

BenedettoAyePalmesanoAye

WeprinAyeWalshAye

RamosAyeDeStefanoAye

BraunsteinAyeManktelowAye

McDonaldAyeSmullenAye

RozicAyeGiglioAye

DinowitzAye

MagnarelliAye

BronsonAye

DilanAye

SeawrightExcused

HyndmanAye

WalkerAye

Bichotte HermelAye

SimonAye

CruzAye

OtisAye

SolagesAye

HunterAye

EpsteinAye

SeptimoAye

Committee:RULES Chair:Pretlow 
DATE:06/06/2025AYE/NAY:27/0 Action: Favorable HeastieExcusedBarclayAye

PretlowAyeHawleyAye

CookAyeBlankenbushAye

GlickExcusedRaAye

DinowitzAyeBrabenecAye

ColtonAyePalmesanoAye

MagnarelliExcusedReillyAye

PaulinAyeSmithExcused

Peoples-StokesAyeJensenAye

BenedettoAye

LavineAye

LupardoAye

BraunsteinAye

DavilaAye

HyndmanAye

RozicAye

BronsonAye

HevesiAye

HunterAye

TaylorAye

CruzAye

VanelAye

Go to topA07845 Floor&nbspVotes:

DATE:06/06/2025Assembly Vote YEA/NAY: 139/0Yes 

Alvarez 

Yes 

Carroll P 

Yes 

Friend 

Yes &#8225

Lee 

ER 

Peoples-Stokes 

ER 

Slater 

Yes 

Anderson 

Yes 

Carroll RC 

ER 

Gallagher 

Yes 

Lemondes 

Yes 

Pheffer Amato 

Yes &#8225

Smith 

Yes 

Angelino 

Yes 

Chandler-Waterm 

Yes 

Gallahan 

Yes 

Levenberg 

Yes 

Pirozzolo 

Yes 

Smullen 

Yes 

Bailey 

Yes 

Chang 

Yes 

Gandolfo 

Yes 

Lucas 

Yes 

Pretlow 

Yes 

Solages 

Yes 

Barclay 

Yes 

Chludzinski 

Yes 

Gibbs 

Yes 

Lunsford 

Yes 

Ra 

Yes 

Steck 

Yes &#8225

Barrett 

Yes 

Clark 

Yes 

Giglio 

Yes 

Lupardo 

Yes 

Raga 

Yes 

Stern 

Yes 

Beephan 

Yes 

Colton 

ER 

Glick 

Yes &#8225

Magnarelli 

Yes &#8225

Rajkumar 

Yes 

Stirpe 

Yes 

Bendett 

Yes &#8225

Conrad 

Yes 

Gonzalez-Rojas 

Yes 

Maher 

Yes &#8225

Ramos 

Yes 

Tague 

Yes 

Benedetto 

Yes 

Cook 

Yes 

Gray 

ER 

Mamdani 

Y

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