New York A 10521: Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state

Status: PRINT NUMBER 10521A (as of 2026-04-07)

State: New York · Session: 2025-2026 · Bill: A 10521

Sponsors: Andrew Hevesi, MaryJane Shimsky, Jo Anne Simon, Anna Kelles, Nily Rozic, Nader Sayegh, Josh Jensen

Bill Text

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A10521 Summary:

BILL NOA10521A

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SAME ASSAME AS S10260

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SPONSORHevesi

&nbsp

COSPNSRShimsky, Simon, Kelles, Rozic, Sayegh, Jensen

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MLTSPNSR

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Amd §2500-a, Pub Health L

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Adds CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases to the newborn screening panel for New York state; requires tests be made available within twelve months.

Go to top A10521 Actions:

BILL NOA10521A

&nbsp

03/06/2026referred to health

04/07/2026amend and recommit to health

04/07/2026print number 10521a

Go to topA10521 Committee&nbspVotes:

Go to topA10521 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topA10521 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 10521--A

 IN ASSEMBLY

 March 6, 2026
 ___________

 Introduced by M. of A. HEVESI -- read once and referred to the Committee
 on Health -- committee discharged, bill amended, ordered reprinted as
 amended and recommitted to said committee

 AN ACT to amend the public health law, in relation to newborn screening
 for CLN2, MPS IVA, MPS VI, MPS VII and Fabry diseases

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. Subdivision 1 of section 2500-a of the public health law is
 2 amended by adding five new paragraphs (l), (m), (n), (o) and (p) to read
 3 as follows:
 4 (l) Late-infantile neuronal ceroid lipofuscinosis type 2 (CLN2).
 5 (m) Mucopolysaccharidosis type IVA (MPS IVA).
 6 (n) Mucopolysaccharidosis type VI (MPS VI).
 7 (o) Mucopolysaccharidosis type VII (MPS VII).
 8 (p) Fabry.
 9 § 2. Section 2500-a of the public health law is amended by adding a
 10 new subdivision 4 to read as follows:
 11 4. The commissioner shall ensure tests are made available for all
 12 diseases and conditions designated pursuant to paragraphs (l), (m), (n),
 13 (o) and (p) of subdivision one of this section within twelve months of
 14 the effective date of such paragraphs.
 15 § 3. This act shall take effect immediately.

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD15047-02-6

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