Florida HB 1383: Pub. Rec./Experimental Treatments for Terminal Conditions and Life-threatening Rare Diseases

Bill Text

HB 1383 2026

CODING: Words stricken are deletions; words underlined are additions.
hb1383-00
Page 1 of 2
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S

A bill to be entitled 1
An act relating to public records; amending s. 2
499.0295, F.S.; providing an exemption from public 3
records requirements certain information contained in 4
a public report published by the Department of Health 5
relating to experimental treatment outcomes and safety 6
signals; providing a statement of public necessity; 7
providing a contingent effective date. 8
9
Be It Enacted by the Legislature of the State of Florida: 10
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Section 1. Paragraph (c) of subsection (7) of section 12
499.0295, Florida Statutes, as amended by HB 1381, 2026 Regular 13
Session, is amended to read: 14
499.0295 Experimental treatments for terminal conditions 15
and life-threatening rare diseases.— 16
(7) 17
(c) The department shall annually publish a public report 18
of experimental treatment outcomes and safety signals in the 19
aggregate. The health information and proprietary pricing 20
information contained in the report is confidential and exempt 21
from s. 119.07(1) and s. 24(a), Art. I of the State 22
Constitution. 23
Section 2. The Legislature finds that it is a public 24
necessity that the health information and proprietary pricing 25

HB 1383 2026

CODING: Words stricken are deletions; words underlined are additions.
hb1383-00
Page 2 of 2
F L O R I D A H O U S E O F R E P R E S E N T A T I V E S

information contained in the annual public report of 26
experimental treatment outcomes and safety signals under s. 27
499.0295, Florida Statutes, be made confidential and exempt from 28
s. 119.07(1), Florida Statutes, and s. 24(a), Article I of the 29
State Constitution. The Legislature finds that the release of 30
such information could harm patients with terminal conditions or 31
life-threatening rare diseases by exposing extremely sensitive 32
personal health data. The Legislature further finds that 33
patients who pursue experimental treatments under the Promising 34
Pathways Act have a strong expectation of privacy regarding 35
their medical information, and that the potential harm resulting 36
from disclosure of such information outweighs any public benefit 37
that may be derived from its release. 38
Section 3. This act shall take effect on the same date 39
that HB 1381 or similar legislation takes effect, if such 40
legislation is adopted in the same legislative session or an 41
extension thereof and becomes law. 42