Illinois HR 922: FSHD AWARENESS DAY
Status: Placed on Calendar Order of Resolutions (as of 2026-05-28)
State: Illinois · Session: 104th · Bill: HR 922
Sponsors: Martin McLaughlin
Bill Text
• Illinois General Assembly - Full Text of HR0922 • • • • • • • • • • • • Select Language × The Illinois General Assembly offers the Google Translate™ service for visitor convenience. In no way should it be considered accurate as to the translation of any content herein. Visitors of the Illinois General Assembly website are encouraged to use other translation services available on the internet. The English language version is always the official and authoritative version of this website. NOTE: To return to the original English language version, select the "Show Original" button on the Google Translate™ menu bar at the top of the window. Choose Language English Afrikaans Albanian Arabic Armenian Azerbaijani Basque Bengali Bosnian Catalan Croatian Czech Danish Dutch Esperanto Estonian Filipino Finnish French Galician Georgian German Greek Gujarati Haitian Creole Hausa Hawaiian Hebrew Hindi Hungarian Icelandic Indonesian Interlingua Interlingue Inuktitut Irish Italian Japanese Javanese Kannada Khmer Korean Latin Latvian Lithuanian Luxembourgish Macedonian Malagasy Malayalam Maltese Maori Marathi Myanmar Nepali Norwegian Odia Pashto Punjabi Romanian Russian Samoan Sango Sanskrit Sardinian Sindhi Sinhala Slovak Slovenian Somali Southern Sotho Spanish Sundanese Swahili Swedish Tamil Telugu Thai Tigrinya Tonga Turkish Ukrainian Urdu Vietnamese Welsh Xhosa Yiddish Yoruba Zulu Powered by Translate Close Illinois General Assembly Top Navigation Bar Translate Learn Select General Assembly Search the 104th General Assembly Enter search terms for legislation, members, committees, or schedules. ILGA.GOV • • LEGISLATION & LAWS • Bills & Resolutions • Public Acts • Illinois Compiled Statutes • Illinois Constitution • Search Legislation • Glossary • Guide • Reports & Inquiry • Legislative Reports • Special Reports • FTP Site • Legislator Lookup • Capitol Complex Phone Numbers • Rules & Regulations • Illinois Register • Administrative Rules • Senate • Members • Schedules • Committees • Request for Remote Testimony • Journals • Transcripts • Rules • Audio/Video • FOIA Information • Senate Employment Opportunities • Media Guidelines • House • Members • Schedules • Committees • Submit testimony for House Committees • Journals • Transcripts • Rules • Audio/Video • FOIA Information • House Employment Opportunities • Log In Mobile Top Bar Search the 104th General Assembly Enter keywords to search the Illinois General Assembly website. Full Text of HR0922 • Home • Legislation • Full Text HR0922 - 104th General Assembly • Bill Status • Full Text • Votes • Witness Slips Select Menu Bill Status Full Text Votes Witness Slips Printer Friendly Version Introduced Printer Friendly Version Introduced Open PDF HR0922LRB104 22030 MST 38091 r 1HOUSE RESOLUTION 2 WHEREAS, Facioscapulohumeral muscular dystrophy, or FSHD, 3is a genetic neuromuscular disease that leads to the weakening 4of skeletal muscles; and 5 WHEREAS, FSHD gets its name from the muscles affected in 6the face (facio), shoulder girdle (scapulo), and upper arms 7(humeral); and 8 WHEREAS, Individuals with FSHD, like those with other rare 9disorders, often experience challenges in obtaining a timely 10diagnosis, which takes an average of nine years for this 11condition; and 12 WHEREAS, An estimated 1 in 8,000 individuals, or 40,000 13Americans, are living with FSHD; and 14 WHEREAS, FSHD symptoms can develop at any age, from 15infancy through adulthood, and can differ in the pattern and 16severity of muscle weakness; and 17 WHEREAS, Approximately 20 percent of individuals with FSHD 18will become dependent on a wheelchair or scooter; and 19 WHEREAS, Patients with FSHD can develop respiratory HR0922- 2 -LRB104 22030 MST 38091 r 1insufficiency, which can be fatal, especially in surgical or 2trauma settings; and 3 WHEREAS, The majority of individuals with FSHD experience 4chronic pain and fatigue, which may severely limit daily 5activities; and 6 WHEREAS, The loss of upper body mobility is a debilitating 7symptom of the disease that can significantly impact the 8ability to perform daily tasks; and 9 WHEREAS, There is a critical need for continued research 10and development of new treatments for FSHD; therefore, be it 11 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 12HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that 13we declare June 20, 2026 as FSHD Awareness Day in the State of 14Illinois. Footer Disclai
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