New York J 464: Memorializing Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness Month in the State of New York

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J00464 Summary:

BILL NOJ00464 

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SAME ASNo Same As

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SPONSORWALCZYK

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COSPNSR

&nbsp

MLTSPNSR

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&nbsp

Go to top J00464 Actions:

BILL NOJ00464 

&nbsp

03/06/2025REFERRED TO FINANCE

03/11/2025REPORTED TO CALENDAR FOR CONSIDERATION

03/11/2025ADOPTED

Go to topJ00464 Committee&nbspVotes:

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There are no Assembly votes for this bill in this legislative session.

Go to topJ00464 Text:

Senate Resolution No. 464

BY: Senator WALCZYK

 MEMORIALIZING Governor Kathy Hochul to proclaim
 April 2025, as TAR Syndrome Awareness Month in the
 State of New York

 WHEREAS, The State of New York takes great pride in recognizing
months of awareness for significant medical conditions with hopes of
increasing education as well as finding treatments and cures; and

 WHEREAS, This Legislative Body is justly proud to memorialize
Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness
Month in the State of New York; and

 WHEREAS, Thrombocytopenia-absent radius (TAR) syndrome is a rare
genetic condition characterized by the absence of the radius bones in
the forearms and low levels of platelets in the blood
(thrombocytopenia); and

 WHEREAS, Thrombocytopenia prevents normal blood clotting, resulting
in easy bruising and frequent nosebleeds, with the potential for
life-threatening episodes of severe bleeding in the brain and other
organs; and

 WHEREAS, Thrombocytopenia usually appears during infancy and becomes
less severe over time, with platelet levels often normalizing in later
childhood and into adulthood; and

 WHEREAS, The physical findings and severity of TAR syndrome vary
among affected individuals and can include skeletal abnormalities of the
arms, legs, or hips, as well as heart defects, kidney defects, and
difficulty digesting milk; and

 WHEREAS, Intellectual development is usually normal and long-term
prognosis is positive in children with TAR who survive the first few
years of life; and

 WHEREAS, During this month, it is important to educate others about
TAR syndrome and support those affected with this disorder and their
families, as well as promote continued medical research and
advancements; and

 WHEREAS, In recognition of the financial, physical, and
psychological impact that TAR Syndrome has on those affected, it is
incumbent of the citizens of the State of New York to support the
courageous individuals living and coping with the condition, and to
advocate for life-saving treatments and research; and

 WHEREAS, It is the sense of this Legislative Body to recognize the
tireless advocates and healthcare providers who spend so much of their
time and resources battling this syndrome that affects so many; now,
therefore, be it

 RESOLVED, That this Legislative Body pause in its deliberations to
memorialize Governor Kathy Hochul to proclaim April 2025, as TAR
Syndrome Awareness Month in the State of New York; and be it further

 RESOLVED, That a copy of this Resolution, suitably engrossed, be
transmitted to the Honorable Kathy Hochul, Governor of the State of New
York.

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