New York S 3124: Relates to the testing of newborns for spinal muscular atrophy and public education thereon

Bill Text

Bill Search and Legislative Information | New York State Assembly 

• 

• 

• 

• 

• 

• 

• 

• 

 Skip to main content 

 New York State Assembly

 Speaker Carl E. Heastie

 --> 
 --> 

 --> 

• 
 Assembly Members 

• 
 Legislative Info 

• 
 Public Hearings 

• 
 Speaker's Press 

• 
 Assembly Reports 

• 
 Committees & More 

• Bill Search Home
• Laws
• Legislative Calendar
• Public Hearing Schedule
• Assembly Calendars
• Assembly Committee Agenda 

 Javascript must be enabled to properly view this page. 

 Bill No.: 

• Summary 
• Actions 
• Committee&nbspVotes 
• Floor&nbspVotes 
• Memo 
• Text 
• LFIN 
• Chamber&nbspVideo/Transcript 
S03124 Summary:

BILL NOS03124 

&nbsp

SAME ASNo Same As

&nbsp

SPONSORORTT

&nbsp

COSPNSR

&nbsp

MLTSPNSR

&nbsp

Amd §2500-a, add §2500-n, Pub Health L

&nbsp

Requires the testing of newborns for spinal muscular atrophy; requires the department of health to educate the public and distribute informational materials on spinal muscular atrophy.

Go to top S03124 Actions:

BILL NOS03124 

&nbsp

01/23/2025REFERRED TO HEALTH

01/07/2026REFERRED TO HEALTH

Go to topS03124 Committee&nbspVotes:

Go to topS03124 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topS03124 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 3124

 2025-2026 Regular Sessions

 IN SENATE

 January 23, 2025
 ___________

 Introduced by Sen. ORTT -- read twice and ordered printed, and when
 printed to be committed to the Committee on Health

 AN ACT to amend the public health law, in relation to the testing of
 newborns for spinal muscular atrophy and public education thereon

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. Subdivision 1 of section 2500-a of the public health law,
 2 as amended by chapter 730 of the laws of 2021, paragraph (j) as amended
 3 by chapter 70 of the laws of 2022 and paragraph (k) as added by chapter
 4 553 of the laws of 2023, is amended to read as follows:
 5 1. It shall be the duty of the administrative officer or other person
 6 in charge of each institution caring for infants twenty-eight days or
 7 less of age and the person required in pursuance of the provisions of
 8 section forty-one hundred thirty of this chapter to register the birth
 9 of a child, to cause to have administered to every such infant or child
 10 in its or his care a test for diseases and conditions designated by the
 11 commissioner under regulations of the commissioner, and for:
 12 (a) Phenylketonuria[.];
 13 (b) Homozygous sickle cell disease[.];
 14 (c) Hypothyroidism[.];
 15 (d) Branched-chain ketonuria[.];
 16 (e) Galactosemia[.];
 17 (f) Homocystinuria[.];
 18 (g) Critical congenital heart defects through pulse oximetry screen-
 19 ing[.];
 20 (h) With regard to any newborn infant who is identified as, or
 21 suspected of, having a hearing impairment as a result of a screening
 22 conducted pursuant to section twenty-five hundred-g of this title, a
 23 urine polymerase chain reaction (PCR) test for cytomegalovirus, unless
 24 the parent of the infant objects thereto; provided that if the commis-
 25 sioner determines that another test for cytomegalovirus is diagnos-

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD06991-01-5

 S. 3124 2

 1 tically equivalent to or better than the urine polymerase chain reaction
 2 test, the commissioner may, by regulation under this section, allow or
 3 require the use of that other test[.];
 4 (i) Adrenoleukodystrophy[.];
 5 (j) Glucose-6-phosphate dehydrogenase deficiency using a quantitative
 6 enzymatic test or other diagnostic test in cases where: the newborn
 7 infant presents with hemolytic anemia, hemolytic jaundice, or early-on-
 8 set increasing neonatal jaundice, that is, jaundice (bilirubin level
 9 greater than fortieth percentile for age in hours) persisting beyond the
 10 day of birth through the week after birth; the newborn infant has been
 11 admitted to the hospital for jaundice following birth; or the biological
 12 parent of the newborn infant indicates a family, racial, or ethnic risk
 13 of glucose-6-phosphate dehydrogenase deficiency, including having
 14 significant African, Asian, Mediterranean, or Middle Eastern ancestry[.]
 15 ;
 16 (k) Duchenne muscular dystrophy using a test validated by the Wads-
 17 worth center for laboratories and research[.]; and
 18 (l) spinal muscular atrophy.
 19 § 2. The public health law is amended by adding a new section 2500-n
 20 to read as follows:
 21 § 2500-n. Spinal muscular atrophy public education. 1. The department
 22 shall develop and publish informational materials for women who may
 23 become pregnant, expectant parents and parents of infants regarding:
 24 (a) the incidence of spinal muscular atrophy;
 25 (b) the risks of spinal muscular atrophy;
 26