New York S 6466: Authorizes reimbursement for testing for familial dysautonomia, Canavan's disease and Tay-Sachs

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S06466 Summary:

BILL NOS06466 

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SAME ASSAME AS A02476

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SPONSORCLEARE

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COSPNSR

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MLTSPNSR

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Amd §§3216, 3221 & 4303, Ins L

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Provides that every policy which provides coverage for hospital, surgical or medical care or provides reimbursement for laboratory tests or diagnostic X-rays shall provide coverage for testing of familial dysautonomia, Canavan's disease and Tay-Sachs; provides that in order to maintain the confidentiality of persons tested, receipt of acknowledgement from the testing facility shall be deemed sufficient evidence of testing.

Go to top S06466 Actions:

BILL NOS06466 

&nbsp

03/14/2025REFERRED TO INSURANCE

01/07/2026REFERRED TO INSURANCE

Go to topS06466 Committee&nbspVotes:

Go to topS06466 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topS06466 Text:

 STATE OF NEW YORK
 ________________________________________________________________________

 6466

 2025-2026 Regular Sessions

 IN SENATE

 March 14, 2025
 ___________

 Introduced by Sen. CLEARE -- read twice and ordered printed, and when
 printed to be committed to the Committee on Insurance

 AN ACT to amend the insurance law, in relation to reimbursement for
 testing for familial dysautonomia, Canavan's disease and Tay-Sachs

 The People of the State of New York, represented in Senate and Assem-
 bly, do enact as follows:

 1 Section 1. Subsection (i) of section 3216 of the insurance law is
 2 amended by adding a new paragraph 40 to read as follows:
 3 (40) (A) Every policy which provides coverage for hospital, surgical
 4 or medical care or provides reimbursement for laboratory tests or
 5 reimbursement for diagnostic X-ray services shall provide coverage for
 6 testing for familial dysautonomia, Canavan's disease and Tay-Sachs.
 7 (B) Such coverage shall be included at the inception of all new poli-
 8 cies and, with respect to all other policies, at any anniversary date of
 9 the policy subject to evidence of insurability.
 10 (C) For purposes of this paragraph, in order to maintain the confiden-
 11 tiality of persons tested, receipt of an acknowledgment from the labora-
 12 tory performing the test for familial dysautonomia, Canavan's disease
 13 and Tay-Sachs shall be deemed sufficient evidence of the performance of
 14 such testing.
 15 (D) Such coverage may be subject to annual deductibles and co-insu-
 16 rance as may be deemed appropriate by the superintendent and as are
 17 consistent with those established for other benefits within a given
 18 policy.
 19 § 2. Subsection (l) of section 3221 of the insurance law is amended by
 20 adding a new paragraph 23 to read as follows:
 21 (23) (A) A group policy which provides coverage for hospital, surgical
 22 or medical care or provides reimbursement for laboratory tests or
 23 reimbursement for diagnostic X-ray services shall provide coverage for
 24 testing for familial dysautonomia, Canavan's disease and Tay-Sachs.

 EXPLANATION--Matter in italics (underscored) is new; matter in brackets
 [ ] is old law to be omitted.
 LBD04430-01-5

 S. 6466 2

 1 (B) Such coverage shall be included at the inception of all new poli-
 2 cies and, with respect to all other policies, at any anniversary date of
 3 the policy subject to evidence of insurability.
 4 (C) For purposes of this paragraph, in order to maintain the confiden-
 5 tiality of persons tested, receipt of an acknowledgment from the labora-
 6 tory performing the test for familial dysautonomia, Canavan's disease
 7 and Tay-Sachs shall be deemed sufficient evidence of the performance of
 8 such testing.
 9 (D) Such coverage may be subject to annual deductibles and co-insu-
 10 rance as may be deemed appropriate by the superintendent and as are
 11 consistent with those established for other benefits within a given
 12 policy.
 13 § 3. Section 4303 of the insurance law is amended by adding a new
 14 subsection (ww) to read as follows:
 15 (ww) (1) A medical expense indemnity corporation, a hospital service
 16 corporation or a health service corporation which provides coverage for
 17 hospital, surgical or medical care or provides reimbursement for labora-
 18 tory tests or reimbursement for diagnostic X-ray services shall provide
 19 coverage for testing for familial dysautonomia, Canavan's