Pennsylvania HB 1527: An Act amending Title 23 (Domestic Relations) of the Pennsylvania Consolidated Statutes, in child protective services, further providing for persons required to report suspected child abuse.

Bill Text

SENATE AMENDED
PRIOR PRINTER'S NOS. 1784, 2011 PRINTER'S NO. 2148
THE GENERAL ASSEMBLY OF PENNSYLVANIA
HOUSE BILL
No. 1527
Session of
2025
INTRODUCED BY DAVIDSON, BIZZARRO, GLEIM, DELLOSO, FRANKEL,
RIVERA, GALLAGHER, NEILSON, CIRESI, WARREN, PIELLI, WEBSTER,
KHAN AND SANCHEZ, MAY 29, 2025
SENATOR CULVER, HEALTH AND HUMAN SERVICES, IN SENATE, AS
AMENDED, JULY 16, 2025
AN ACT
Amending the act of July 7, 2017 (P.L.285, No.14), entitled "An
act establishing the Rare Disease Advisory Council and
providing for its powers and duties; and providing for duties
of the Department of Health, the Insurance Department, the
Department of Human Services and the Department of
Education," further providing for establishment and
membership and for expiration.
REENACTING AND AMENDING THE ACT OF JULY 7, 2017 (P.L.285,
NO.14), ENTITLED "AN ACT ESTABLISHING THE RARE DISEASE
ADVISORY COUNCIL AND PROVIDING FOR ITS POWERS AND DUTIES; AND
PROVIDING FOR DUTIES OF THE DEPARTMENT OF HEALTH, THE
INSURANCE DEPARTMENT, THE DEPARTMENT OF HUMAN SERVICES AND
THE DEPARTMENT OF EDUCATION."
The General Assembly of the Commonwealth of Pennsylvania
hereby enacts as follows:
Section 1. Section 3(b) of the act of July 7, 2017 (P.L.285,
No.14), known as the Rare Disease Advisory Council Act, is
amended by adding paragraphs to read:
Section 3. Establishment and membership.
* * *
(b) Members.--The advisory council shall consist of the
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following members:
* * *
(5) An individual appointed by the Majority Leader of
the Senate.
(6) An individual appointed by the Minority Leader of
the Senate.
(7) An individual appointed by the Majority Leader of
the House of Representatives.
(8) An individual appointed by the Minority Leader of
the House of Representatives.
* * *
Section 2. Section 7 of the act is amended to read:
Section 7. Expiration.
This act shall expire June 30, [2025] 2028.
Section 3. This act shall take effect immediately.
SECTION 1. SECTIONS 1 AND 2 OF THE ACT OF JULY 7, 2017
(P.L.285, NO.14), KNOWN AS THE RARE DISEASE ADVISORY COUNCIL
ACT, ARE REENACTED TO READ:
SECTION 1. SHORT TITLE.
THIS ACT SHALL BE KNOWN AND MAY BE CITED AS THE RARE DISEASE
ADVISORY COUNCIL ACT.
SECTION 2. DEFINITIONS.
THE FOLLOWING WORDS AND PHRASES WHEN USED IN THIS ACT SHALL
HAVE THE MEANINGS GIVEN TO THEM IN THIS SECTION UNLESS THE
CONTEXT CLEARLY INDICATES OTHERWISE:
"ADVISORY COUNCIL." THE RARE DISEASE ADVISORY COUNCIL
ESTABLISHED IN SECTION 3.
"DEPARTMENT." THE DEPARTMENT OF HEALTH OF THE COMMONWEALTH.
"RARE DISEASE." A DISEASE OR CONDITION THAT AFFECTS FEWER
THAN 200,000 INDIVIDUALS LIVING IN THE UNITED STATES.
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"SECRETARY." THE SECRETARY OF HEALTH OF THE COMMONWEALTH.
SECTION 2. SECTION 3 OF THE ACT IS REENACTED AND AMENDED TO
READ:
SECTION 3. ESTABLISHMENT AND MEMBERSHIP.
(A) ESTABLISHMENT.--THE RARE DISEASE ADVISORY COUNCIL IS
ESTABLISHED.
(B) MEMBERS.--THE ADVISORY COUNCIL SHALL CONSIST OF THE
FOLLOWING MEMBERS:
(1) THE SECRETARY OR A DESIGNEE AUTHORIZED TO ACT ON
BEHALF OF THE SECRETARY.
(2) THE HEADS OF STATE AGENCIES THAT MAY BE CONCERNED
WITH THE PROVISION OF CARE TO PERSONS WITH RARE DISEASES OR
DESIGNEES AUTHORIZED TO ACT ON BEHALF OF THE AGENCY HEADS. AT
A MINIMUM, MEMBERS UNDER THIS PARAGRAPH SHALL INCLUDE THE
SECRETARY OF HUMAN SERVICES AND THE SECRETARY OF EDUCATION OR
THEIR RESPECTIVE DESIGNEES.
(3) THE INSURANCE COMMISSIONER OR A DESIGNEE AUTHORIZED
TO ACT ON BEHALF OF THE INSURANCE COMMISSIONER.
(4) PUBLIC MEMBERS TO BE APPOINTED BY THE SECRETARY, WHO
SHALL INCLUDE:
(I) THREE PHYSICIANS LICENSED TO PRACTICE IN THIS
COMMONWEALTH WHO HAVE EXPERTISE IN THE DIAGNOSIS AND
MANAGEMENT OF PATIENTS WITH RARE DISEASES, ONE OF WHOM
SHALL BE A PEDIATRICIAN WHO PROVIDES CARE TO CHILDREN
WITH RARE DISEASES.
(II) TWO REGISTERED PROFESSIONAL NURSES OR NURSE
PRACTITIONERS LICENSED IN THIS COMMONWEALTH WHO HAVE
EXPERTISE IN PROVIDING CARE TO PATIENTS WITH RARE
DISEASES.
(III) AN EPIDEMIOLOGIST LICENSED IN THIS
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COMMONWEALTH WHO HAS EXPERTISE IN THE INCIDENCE,
PREVALENCE AND CONTROL OF RARE DISEASES.
(IV) TWO REPRESENTATIVES OF HOSPITALS IN THIS
COMMONWEALTH, ONE OF WHICH MUST BE A RESEARCH HOSPITAL.
(V) TWO REPRESENTATIVES OF THE HEALTH INSURANCE
INDUSTRY.
(VI) TWO REPRESENTATIVES INVOLVED IN THE
BIOPHARMACEUTICAL INDUSTRY.
(VII) TWO REPRESENTATIVES OF THE SCIENTIFIC
COMMUNITY WHO ARE ENGAGED IN RARE DISEASE RESEARCH.
(VIII) TWO PARENTS, EACH OF WHOM HAS A CHILD WITH A
RARE DISEASE, NOT OF THE SAME FAMILY.
(IX) TWO INDIVIDUALS WITH RARE DISEASES.
(X) REPRESENTATIVES OF TWO RARE DISEASE-SPECIFIC
PATIENT ORGANIZATIONS THAT OPERATE WITHIN THIS
COMMONWEALTH.
(5) AN INDIVIDUAL APPOINTED BY THE MAJORITY LEADER OF
THE SENATE.
(6) AN INDIVIDUAL APPOINTED BY THE MINORITY LEADER OF
THE SENATE.
(7) AN IN