Illinois HR 344: CONGRATS - ROBERT WISNIEWSKI

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HR0344LRB104 13625 LAW 26254 r

1HOUSE RESOLUTION

2 WHEREAS, Giant Axonal Neuropathy (GAN) is a rare, 

3terminal, inherited neurodegenerative disorder that affects 

4both the central and peripheral nervous systems, leading to 

5progressive muscle weakness, impaired coordination, and other 

6severe symptoms; and

7 WHEREAS, GAN primarily manifests in early childhood and 

8progressively worsens over time, significantly impacting 

9mobility, motor function, and overall quality of life; and

10 WHEREAS, GAN is caused by mutations in the GAN gene, which 

11disrupts the proper function of nerve cells, ultimately 

12leading to the deterioration of the nervous system; and

13 WHEREAS, GAN currently has no cure, and treatment options 

14remain limited to symptom management and supportive care; and

15 WHEREAS, Approximately 75 known people have been diagnosed 

16with GAN worldwide, including Ethan Tkalec of Riverside; and

17 WHEREAS, Increased awareness, research funding, and early 

18diagnosis are critical to improving outcomes for individuals 

19affected by GAN and their families; and

HR0344- 2 -LRB104 13625 LAW 26254 r

1 WHEREAS, Advocacy organizations, medical researchers, and 

2healthcare providers are working diligently to advance 

3scientific understanding and explore potential therapies for 

4GAN; and

5 WHEREAS, It is imperative that the State of Illinois 

6recognizes the challenges faced by individuals living with GAN 

7and their caregivers and supports initiatives to enhance 

8research, education, and awareness of this rare disease; 

9therefore, be it

10 RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE ONE 

11HUNDRED FOURTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that 

12we declare May 28, 2025 as Gian