New York J 282: Memorializing Governor Kathy Hochul to proclaim June 30, 2025, as Arthrogryposis Awareness Day in the State of New York

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J00282 Summary:

BILL NOJ00282 

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SAME ASNo Same As

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SPONSORMURRAY

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COSPNSR

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MLTSPNSR

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Go to top J00282 Actions:

BILL NOJ00282 

&nbsp

01/30/2025REFERRED TO FINANCE

02/04/2025REPORTED TO CALENDAR FOR CONSIDERATION

02/04/2025ADOPTED

Go to topJ00282 Committee&nbspVotes:

Go to topJ00282 Floor&nbspVotes:

There are no Assembly votes for this bill in this legislative session.

Go to topJ00282 Text:

Senate Resolution No. 282

BY: Senator MURRAY

 MEMORIALIZING Governor Kathy Hochul to proclaim
 June 30, 2025, as Arthrogryposis Awareness Day in
 the State of New York

 WHEREAS, It is the custom of this Legislative Body to recognize
official days that are set aside to increase awareness of serious health
conditions that affect the lives of citizens of New York State; and

 WHEREAS, Attendant to such concern, and in full accord with its
long-standing traditions, this Legislative Body is justly proud to
memorialize Governor Kathy Hochul to proclaim June 30, 2025, as
Arthrogryposis Awareness Day in the State of New York; and

 WHEREAS, Arthrogryposis Multiplex Congenita (AMC) is a rare
condition that occurs in utero where there are multiple congenital (from
birth) joint contractures, or multiple joints that are stuck in one
position and have very little flexibility, resulting in low muscle tone;
and

 WHEREAS, Translated, arthro means joint, gryposis means crooked,
multiplex means multiple, and congenita means existing at birth or
present at birth; and

 WHEREAS, Arthrogryposis is an umbrella diagnosis with many syndromes
and subtypes and occurs 1 in 3,000 live births; AMC is non-progressive
but the contractures can recur after treatment; furthermore, all joints,
including the spine and the jaw, can be affected; and

 WHEREAS, Currently, there are 400 identified types of Arthrogryposis
such as Amyoplasia and Distal; some individuals never have their type of
Arthrogryposis identified; and

 WHEREAS, Most distal Arthrogryposis types and most syndromes (like
Escobar, Sheldon-Hall) are genetic in origin; 20-30% of babies born with
AMC will die in the newborn period because they have a lethal genetic
type or they have severe central nervous system dysfunction; and

 WHEREAS, Approximately 1/3 of cases of AMC are amyoplasia type which
is non-genetic and sporadic in the population; and

 WHEREAS, The cause of Arthrogryposis is not fully known at this time
but may be due to an unborn baby not moving properly during fetal
development; movement is vital to proper joint development; and

 WHEREAS, Common joint contractures include: clubbed feet or vertical
talus, extended or flexed knees, dislocated and/or externally rotated
hips, internally rotated shoulders, extended or flexed elbows, flexed
wrists, adducted thumbs (stuck-in-palm), and fingers are fisted or
extended; and

 WHEREAS, While there is no cure for AMC, stretching the joints
multiple times per day, serial casting, various therapies (physical,
occupational, and speech), splinting, bracing, tendon releases and

lengthening, osteotomies (bone cuts), and external fixators can help
improve a person's independence level and quality of life; and

 WHEREAS, Despite the fact there is no cure for AMC, most children
with Arthrogryposis grow up to be independent and successful adults; and

 WHEREAS, On June 30, 2025, families across the State of New York and
the Nation will be wearing the color blue to honor those affected by
Arthrogryposis; and

 WHEREAS, Increased awareness and expanded knowledge of
Arthrogryposis, as well as its impact on the quality of life of those
affected, will allow the community-at-large to better support people who
struggle with the challenges of this disorder; now, therefore, be it

 RESOLVED, That this Legislative Body pause in its deliberations to
memorialize Governor Kathy Hochul to proclaim June 30, 2025, as
Arthrogryposis Awareness Day in the State of New York; and be it further

 RESOLVED, That a copy of this Resolution, suitably engrossed, be
transmitted to The Honorable Kathy Hochul, Governor of the State of New
York.

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