New York S 1287: Establishes the rare disease advisory council
Status: RETURNED TO SENATE (as of 2026-03-10)
State: New York · Session: 2025-2026 · Bill: S 1287
Sponsors: Roxanne J. Persaud, Brad Hoylman-Sigal, Cordell Cleare, Dean Murray, Gustavo Rivera, Jack M. Martins, Jake Ashby, Jeremy Cooney, Joseph P. Addabbo Jr., Lea Webb, Leroy Comrie, Nathalia Fernandez, Pamela Helming, Patrick M. Gallivan, Rachel May
Bill Text
Bill Search and Legislative Information | New York State Assembly • • • • • • • • Skip to main content New York State Assembly Speaker Carl E. Heastie --> --> --> • Assembly Members • Legislative Info • Public Hearings • Speaker's Press • Assembly Reports • Committees & More • Bill Search Home • Laws • Legislative Calendar • Public Hearing Schedule • Assembly Calendars • Assembly Committee Agenda Javascript must be enabled to properly view this page. Bill No.: • Summary • Actions • Committee Votes • Floor Votes • Memo • Text • LFIN • Chamber Video/Transcript S01287 Summary: BILL NOS01287B   SAME ASSAME AS A01296-B   SPONSORPERSAUD   COSPNSRADDABBO, ASHBY, CLEARE, COMRIE, COONEY, FERNANDEZ, GALLIVAN, HELMING, HOYLMAN-SIGAL, MARTINS, MAY, MURRAY, RIVERA, WEBB   MLTSPNSR   Add Art 2 Title 2-F §245, Pub Health L   Establishes the rare disease advisory council to identify best practices, raise awareness regarding rare diseases, evaluate barriers to access to care, and to make recommendations to the legislature and the governor. Go to top S01287 Actions: BILL NOS01287B   01/09/2025REFERRED TO HEALTH 01/30/2025AMEND AND RECOMMIT TO HEALTH 01/30/2025PRINT NUMBER 1287A 03/04/20251ST REPORT CAL.487 03/05/20252ND REPORT CAL. 03/10/2025ADVANCED TO THIRD READING 03/19/2025PASSED SENATE 03/19/2025DELIVERED TO ASSEMBLY 03/19/2025referred to ways and means 05/29/2025substituted for a1296a 05/29/2025ordered to third reading rules cal.291 01/07/2026died in assembly 01/07/2026returned to senate 01/07/2026REFERRED TO HEALTH 01/08/2026AMEND AND RECOMMIT TO HEALTH 01/08/2026PRINT NUMBER 1287B 02/04/20261ST REPORT CAL.283 02/05/20262ND REPORT CAL. 02/09/2026ADVANCED TO THIRD READING 02/10/2026PASSED SENATE 02/10/2026DELIVERED TO ASSEMBLY 02/10/2026referred to ways and means 03/10/2026substituted for a1296b 03/10/2026ordered to third reading cal.47 03/10/2026passed assembly 03/10/2026returned to senate Go to topS01287 Committee Votes: Go to topS01287 Floor Votes: DATE:03/10/2026Assembly Vote YEA/NAY: 143/0Yes Alvarez Yes Carroll P Yes Friend Yes Lemondes Yes Pheffer Amato Yes Slater Yes Anderson Yes Carroll RC Yes Gallagher Yes Levenberg Yes Pirozzolo Yes Smith Yes Angelino Yes Cashman Yes Gallahan Yes Lucas Yes Powers Yes Smullen Yes Bailey Yes Chandler-Waterm Yes Gandolfo Yes Lunsford Yes Pretlow Yes Solages Yes Barclay Yes Chang Yes Gibbs Yes Lupardo Yes Ra Yes Steck Yes Barrett Yes Chludzinski Yes Giglio Yes Magnarelli Yes Raga Yes Stern Yes Beephan Yes Clark Yes Glick ER Maher Yes Rajkumar Yes Stirpe Yes Bendett Yes Colton Yes Gonzalez-Rojas Yes Manktelow Yes Ramos Yes Tague Yes Benedetto Yes Conrad ER Gray Yes McDonald Yes Reilly Yes Tannousis Yes Berger ER Cook Yes Griffin Yes ‡ McDonough Yes Reyes Yes Tapia Yes Bichotte Hermel Yes Cruz Yes Hawley Yes McMahon Yes Rivera Yes Taylor Yes Blankenbush Yes Cunningham Yes Hevesi Yes Meeks Yes Romero Yes Torres Yes Blumencranz Yes Dais Yes Hooks Yes Mikulin Yes Rosenthal ER Valdez Yes Bologna Yes Davila Yes Hunter Yes Miller Yes Rozic Yes Vanel Yes Bores Yes De Los Santos Yes Hyndman Yes Mitaynes Yes Santabarbara Yes Walker Yes Brabenec Yes DeStefano Yes Jackson Yes Molitor Yes Sayegh Yes Walsh Yes Braunstein Yes Dilan Yes Jacobson Yes Moreno Yes Schiavoni Yes Weprin Yes Bronson Yes Dinowitz Yes Jensen Yes Morinello Yes Seawright Yes Wieder Yes Brook-Krasny Yes DiPietro Yes Kassay Yes Norber Yes Sempolinski ER Williams Yes Brown EA Yes Durso Yes Kay Yes Novakhov Yes Septimo Yes Woerner Yes Brown K Yes Eachus Yes Kelles Yes O'Pharrow Yes Shimsky Yes Wright Yes Burdick Yes Eichenstein Yes Kim Yes Otis Yes Shrestha Yes Yeger Yes Burke Yes Fall Yes Lasher Yes Palmesano Yes Simon ER Zaccaro Yes Burroughs Yes Fitzpatrick Yes Lavine Yes Paulin Yes Simone Yes Zinerman Yes Buttenschon Yes Forrest Yes Lee ER Peoples-Stokes Yes Simpson Yes Mr. Speaker ‡ Indicates voting via videoconference Go to topS01287 Text: STATE OF NEW YORK ________________________________________________________________________ 1287--B 2025-2026 Regular Sessions IN SENATE January 9, 2025 ___________ Introduced by Sens. PERSAUD, ADDABBO, ASHBY, CLEARE, COMRIE, COONEY, FERNANDEZ, GALLIVAN, MARTINS, MAY, MURRAY, RIVERA, WEBB -- read twic
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